Well my beloved readers,
It's been a week on the new chemo and so far so good. (cross fingers, toes, eyes, arms, legs...anything that will cross, touch all wood as you pas it etc etc etc that it will continue like this!)
Check up yesterday, cell count down to 16.2 and platelets were 399, so that's all good as well.
I've had a fairly manic week seeing people being the oh so popular person that I am! Last night it was just me and my flatty in and it was odd that no one was over for sups, and that there was no where to go after supper other than bed! I would also like to add at this point thatI made a particulary (can't spell) bloody yummy soup, so went to bed at about 10pm, (yes I am a crazy crazy person) a very contented little bunny!
Today I went to a launch thing for the formation of Youth Cancer Forum Scotland, so if you hear anything about it, check it out, and if there is press about supporting it, SUPPORT IT!!! I had a really good time actually and met a few people that have had cancer and had a real giggle with them which was actually really great. I've avoided everything I've been invited to by my Click Sargeat (ok, quick plug, Milo..for those of you who read this and don't know me, he's my younger brother, is hoping to raise money for Click Sargent (and therefore me!!) by running the London Marathon in March or April, or whenever it its. As the time gets close I will be mentioning it ALL THE TIME so start saving your pennies up NOW to sponser him!) up here to do with young and cancer as I haven't felt like being with other people who have cancer due to their appearance (ie looking ill) etc, but as I've been diagnosed for over 8 months (fuck, how time flies!) and I know that I'm fine etc etc I felt that I should go and support it as it's important, and it was due to people in that room that I've had such good support etc It was also really funny cause the people there (who have either been given the all clear, or are on 6 month/ yearly check ups etc) were amazed that I was only diagnosed in Jan as I look so well etc etc which was a real boost actually. I also left the lunch with a real lift which was also a bit of a surprise, as I didn't really know what today was going to be like etc. I don't want to give the impression that I'm not happy most/all of the time, cause I am....I just didn't expect to feel so good after spending so much time with people who have/had cancer.
Feel free to check out the website from today.....www.ycfscot.org
What else, not sure, that's about it really I think. Got another check up next thurs, so will be back then with more cell count updates.
As always, lot of love, laughter and smiles,
XXX
Friday, 28 September 2007
Saturday, 22 September 2007
Back in the Burg
Dear All,
Well it's been a while since the last post, and I know it's cause I've been fairly crap, but I hope that this will make up for the silence...
Well where to start, hmmmm, prob with what has happened since the last blog, rather than the most recent thing and work backwards. Mainly because it makes sense to start from where I left off, and also becuase I think this is going to be quiter a mammoth post, and I will start going all over the place if I work backwards from today and confuse you all even more than I normally do!
Ok, so, IVF..... I have had the procedure and they managed to collect 16 eggs which is fantastic as they say 12 is pretty impressive, so go me! Although I was conscious during the proceedure I can't remember it, which is probably a good thing! Felt fine during the rest of the day, was a bit dopey, but was to be expected. That night I woke up in THE MOST EXCRUCIATING (and yes, that is how you spell it in my world) pain and ended up in Swindon A & E, which to be fair to Swindin was perfectly acceptable and seemed to be pretty clean, so well done swindon! They decided to keep me in over night in case I was producing a lot if fluid in the ovaries or bleeding, which to be fair, I was amazed that I wasn't after beeing jabbed at for about half an hour with a needle...anyways, was put in a bed on a ward and was allowed to go home the next afternoon. Oh, and whilst all this was going on I was meant to be packing up my room for the move......
The next day, Thursday, I took myself off the the Hammersmith for a final IVF check, and although was so swollen (looked about 5 months pregnant.....) and in quite a lot of pain, everything looked fine, and they weren't concerned. After the IVF check up, I toddled over to Haematology where I had stem cells taken. This consisted of two drips, one taking blood and feeding it into a machine, and the other feeding the blood minus the stem cells back into my body. It took about 3 and a half hours, and although a bit dull cause I wasn't allowed to move my arms due to rather huge neeedles in my veins and they didn't want them to dislodge, was fine cause my lovely cousin came and kept me company. I didn't end up finishing at the hospital til 5.30 and was meant to vbe driving myself back home, but as I'd been up since 7 and had effectively been through a blood transfusion, the rents decided to come and get me...Also during the taking of stems cells my legs and face had gone really tingly due to my blood being stripped of calcium, it probably wasn't the best idea for me to drive. It's a shame I haven't worked out how to put pics on this cause I had 2 very impressive bandages on my arms (due to the huge needles), and 2 smaller ones...I caused a bit of a stir when we went out for supper that night, as you coud see a bit of one of the bandages on my wrist, and the waitor thought I'd slit my wrist....good!!!
The next morning was the day of the move, oh and also the funny thing was that as I had been in hospital for basically the whole week I hadn't been able to do my packing, and they had packed my drugs, including the £42.50 per injection injections in the lorry and could't get to them, so had to inject myself a good 12 hours late (I had to inject for 5 days after the procedure so my ovaries calmed down and didn't go crazy). I was also driving that afternoon to Oxford as I was going to holiday the next morning at 4am, and my suitcase was also nowhere to be seen......
So we get to the new house (me and daddy at about 3pm, the lorry was supposedly going to be there by 4pm YEAH RIGHT!!!!) and wait for the lorry. They had been told it would take them 2 hours from near Swindon to near Colchester. The m25 on a friday afternoon, need I say more??? (it took them about 6 hours) So they eventually turned up at about 7pm. I had aimed to leave by about 4pm, to pick up a friend on the way. To cut a long story short, I left home at about 11.45 and got to Oxford at 3am and left there at 4am, oh and I was still limited on the movement front etc due to ovary pain...it was a FUN couple of dauys!!!! The plus side was a week in the sun in Mallorca with really great friends, and a fucking lush house to come home to at the end of it!
Right, that's the end of the summer in a nut shell. I am now back in the Burg and started the new chemo yesterday morning, so we shall have to wait and see.....It's better than the other one in as much as I don't have to take it on a full stomach etc etc etc which means I take it when I get up, so don't have to worry about forgetting when I go out or supper etc etc etc It also means I can eat what I want and don't have to plan incase it makeds me feel sick..woo!!!
Well that's about it really, and I'm bored of typing, oh just thought of somthing rather crucial, on Thurs at my check up, my count was 24, when I was in A and E it was 83....
More next week after the next check up....
Lots of love, laughter and smiles,
XXX
Well it's been a while since the last post, and I know it's cause I've been fairly crap, but I hope that this will make up for the silence...
Well where to start, hmmmm, prob with what has happened since the last blog, rather than the most recent thing and work backwards. Mainly because it makes sense to start from where I left off, and also becuase I think this is going to be quiter a mammoth post, and I will start going all over the place if I work backwards from today and confuse you all even more than I normally do!
Ok, so, IVF..... I have had the procedure and they managed to collect 16 eggs which is fantastic as they say 12 is pretty impressive, so go me! Although I was conscious during the proceedure I can't remember it, which is probably a good thing! Felt fine during the rest of the day, was a bit dopey, but was to be expected. That night I woke up in THE MOST EXCRUCIATING (and yes, that is how you spell it in my world) pain and ended up in Swindon A & E, which to be fair to Swindin was perfectly acceptable and seemed to be pretty clean, so well done swindon! They decided to keep me in over night in case I was producing a lot if fluid in the ovaries or bleeding, which to be fair, I was amazed that I wasn't after beeing jabbed at for about half an hour with a needle...anyways, was put in a bed on a ward and was allowed to go home the next afternoon. Oh, and whilst all this was going on I was meant to be packing up my room for the move......
The next day, Thursday, I took myself off the the Hammersmith for a final IVF check, and although was so swollen (looked about 5 months pregnant.....) and in quite a lot of pain, everything looked fine, and they weren't concerned. After the IVF check up, I toddled over to Haematology where I had stem cells taken. This consisted of two drips, one taking blood and feeding it into a machine, and the other feeding the blood minus the stem cells back into my body. It took about 3 and a half hours, and although a bit dull cause I wasn't allowed to move my arms due to rather huge neeedles in my veins and they didn't want them to dislodge, was fine cause my lovely cousin came and kept me company. I didn't end up finishing at the hospital til 5.30 and was meant to vbe driving myself back home, but as I'd been up since 7 and had effectively been through a blood transfusion, the rents decided to come and get me...Also during the taking of stems cells my legs and face had gone really tingly due to my blood being stripped of calcium, it probably wasn't the best idea for me to drive. It's a shame I haven't worked out how to put pics on this cause I had 2 very impressive bandages on my arms (due to the huge needles), and 2 smaller ones...I caused a bit of a stir when we went out for supper that night, as you coud see a bit of one of the bandages on my wrist, and the waitor thought I'd slit my wrist....good!!!
The next morning was the day of the move, oh and also the funny thing was that as I had been in hospital for basically the whole week I hadn't been able to do my packing, and they had packed my drugs, including the £42.50 per injection injections in the lorry and could't get to them, so had to inject myself a good 12 hours late (I had to inject for 5 days after the procedure so my ovaries calmed down and didn't go crazy). I was also driving that afternoon to Oxford as I was going to holiday the next morning at 4am, and my suitcase was also nowhere to be seen......
So we get to the new house (me and daddy at about 3pm, the lorry was supposedly going to be there by 4pm YEAH RIGHT!!!!) and wait for the lorry. They had been told it would take them 2 hours from near Swindon to near Colchester. The m25 on a friday afternoon, need I say more??? (it took them about 6 hours) So they eventually turned up at about 7pm. I had aimed to leave by about 4pm, to pick up a friend on the way. To cut a long story short, I left home at about 11.45 and got to Oxford at 3am and left there at 4am, oh and I was still limited on the movement front etc due to ovary pain...it was a FUN couple of dauys!!!! The plus side was a week in the sun in Mallorca with really great friends, and a fucking lush house to come home to at the end of it!
Right, that's the end of the summer in a nut shell. I am now back in the Burg and started the new chemo yesterday morning, so we shall have to wait and see.....It's better than the other one in as much as I don't have to take it on a full stomach etc etc etc which means I take it when I get up, so don't have to worry about forgetting when I go out or supper etc etc etc It also means I can eat what I want and don't have to plan incase it makeds me feel sick..woo!!!
Well that's about it really, and I'm bored of typing, oh just thought of somthing rather crucial, on Thurs at my check up, my count was 24, when I was in A and E it was 83....
More next week after the next check up....
Lots of love, laughter and smiles,
XXX
Wednesday, 22 August 2007
a posting from pimlico
Dear All,
I am aware that I have been very quiet on the whole blog front. The main reason being that I can't do it at home, but this will probably change once we move (next fri) and you never know, the internet there may be different and allow me to log on...!!! I have also spent the most wonderful week in Sardinia, so obviously was not going to waste precious sun worshipping time on the net!
I am tired at the mo as have been up at stupid o'clock for the last god knows how many days as I can only go to the IVF clinic between 7.30 and 9.30 am and have to be there almost daily (oh the joys) and can't really be arsed to write a huge long update which I now I really should do....
Haematology stuff....all is good, off all drugs, white cell count was up a bit (16) last check up, but was to be expected. Next check up 10th Sept when I will prob have stems cells taken if the count has gone up to 50 or more...
IVF stuff...all good, having to inject myself daily with hormones..it's amazing what you will do when you have to! Am not a complete hormonal mess which is nice, and think I'll have the eggs collected next monish. I'm sure I have more to say, but really can't think of anything. Am also sitting in an internet cafe in Pimlico and the house where I am staying at this week is just around the corner and I can hear the sofa calling me and there are a couple of trashy films that I have lined up to watch so think I will bugger off!
Sorry this isn't really that informative, everything is going well and I'm fine etc etc etc which I suppose is the most important part! Not sure when the next entry will be, possibly when I'm back at uni (12th ish) after the move and spending 8 days in Mallorca (HA HA HA enjoy the crap weather in sunny old England).
Lota of love etc etc etc
XXX
I am aware that I have been very quiet on the whole blog front. The main reason being that I can't do it at home, but this will probably change once we move (next fri) and you never know, the internet there may be different and allow me to log on...!!! I have also spent the most wonderful week in Sardinia, so obviously was not going to waste precious sun worshipping time on the net!
I am tired at the mo as have been up at stupid o'clock for the last god knows how many days as I can only go to the IVF clinic between 7.30 and 9.30 am and have to be there almost daily (oh the joys) and can't really be arsed to write a huge long update which I now I really should do....
Haematology stuff....all is good, off all drugs, white cell count was up a bit (16) last check up, but was to be expected. Next check up 10th Sept when I will prob have stems cells taken if the count has gone up to 50 or more...
IVF stuff...all good, having to inject myself daily with hormones..it's amazing what you will do when you have to! Am not a complete hormonal mess which is nice, and think I'll have the eggs collected next monish. I'm sure I have more to say, but really can't think of anything. Am also sitting in an internet cafe in Pimlico and the house where I am staying at this week is just around the corner and I can hear the sofa calling me and there are a couple of trashy films that I have lined up to watch so think I will bugger off!
Sorry this isn't really that informative, everything is going well and I'm fine etc etc etc which I suppose is the most important part! Not sure when the next entry will be, possibly when I'm back at uni (12th ish) after the move and spending 8 days in Mallorca (HA HA HA enjoy the crap weather in sunny old England).
Lota of love etc etc etc
XXX
Friday, 3 August 2007
The truth about IVF....
| Dear All, Hmmm.. have just thought, have I written about my meeting with Mr. Panay, I don't think so, let me check.....no I haven't.... Ok, so went to the Hammersmith last Friday to see Mr. Panay (who is apparently THE expert, and have since found out that he's not, and didn't really explain anything...)who said I can either have eggs frozen or tissue from my ovary removed and frozen. As I think the Haematology department are getting eager for me to start the new chemo, he made me an appointment for yesterday to begin, as I thought, hormone injections to prepare my body to have eggs harvested and frozen, but of course this was not the case and the Gynaecology department, are, well for want of a better word, SHIT! Yesterday after trotting between two departments as I wasn't on the screen and Gyne didn't know what was going on, surprise, surprise, apparently I had an appointment booked for NOVEMBER 2nd, NOT August 2nd....and I'm afraid I lost my temper and bit....went back to the department they had sent me to, can't remember who they are, and they instead of sending me back to Gyne rang them and sorted out what was going on, so I eventually saw the doctor. So instead of starting the process, I had yet another consultation, but to be fair the doctor was really nice and spent loads of time really explaining what the two options are and the procedures and pro's and con's etc Due to statistics etc I will go for the egg freezing as it has the highest success rate, oh yes, and that's only 10%....!!! With the tissue freezing there have only been 3 live births worldwide and none in England.....! So good! Oh and also, in England I can't get the IVF done on the NHS so it's going to cost....wait for it.....nearly £4,000, not including the £200 a year cost for freezing...so am going to try and find out if I can get it done on the NHS in Edinburgh.... What else, that's about it really, got another haematology appointment on Monday and then I'm off to Sardinia, can't fucking wait, am gonna get sooooooooo brown!!! And read Harry Potter as I've been saving it, and have a nice relaxed time (as my life is soooo stressful, obviously as I have a manic job and am never at home, always chained to my desk...!!!!)m On that note of being busy, I'm currently in Manchester as I've been helping my cousin move to London... Well me thinks that's about it, will try and get on this before I go away to let you all know when I'm going ahead with the IVf and let you know my check up results. XXX |
Thursday, 26 July 2007
IVF stuff
Sooooooooooooo, I went back to the Hammersmith on Tues to see Mr. Panay, the expert and only consultant I can see to discuss what's going to happen to me etc etc etc and gues what..HE WASN'T BLOODY THERE!!!!!!!! Thank god I had an unofficial heamatology appointment as well otherwise I would have gone fucking ballistic as I would have travelled to london and spent £30 on travel for nothing! So I get an earlier train to go to Haematology first to have a blood test (no worries, ate something whilst waiting so no near feinting...!! And the nurse was the same one as last time and also quadrouple checked..!!!) and then trot over to Gyne to announce my arrival. At least this time I was on the system, and expected and they had my notes. A miracle! The only fuck up, a lack of the consutant, so saw someone else who couldn't help and made the wonderful announcement of as I've already been on chemo, they might not be able to do the procedure...GREAT!!! I do not believe this is true as in Edinburgh they said that Glevec wouldn't affect fertility.
So, I was a little bit irritated and have been squeezed into the clinic on Friday at 11, which means getting my old buddy, the 8.45 train, which means, yes, it will be expensive and it's early and blah blah blah. If he's not there on Fri, they are going to see the biggest hissy fit they have EVER seen!! I also want to start the process going, as I have, well so far, very little faith in the competance of the Gyne department and don't want to be traipsing down from Edinburgh to have the procedure done etc cause they've taken so long to get their acts together!! Would also like to start the new chemo to see how I react to it and if I don't react well to get it sorted at the Hammersmith rather than in Edinburgh, cause lets face it, the Hammersmith is much better!
On the haematology front, everything is fine, white cell 4.9, platelets up a bit to 178, but it's all under control...!
As I finish house sitting tomorrow morning when I get on the train, I shan't be able to update my blog unless a miracle has happened at home with the laptops and broadband and let me log in, so shall write again as soon as I can....
I also hope that someone who reads this is having nice sunny weather, and not the rain that I am experiancing (every day...sun...summer???? Where is it??) If you are, tell me where you are, because I'm coming to stay!!
Lots of love etc etc
XXX
So, I was a little bit irritated and have been squeezed into the clinic on Friday at 11, which means getting my old buddy, the 8.45 train, which means, yes, it will be expensive and it's early and blah blah blah. If he's not there on Fri, they are going to see the biggest hissy fit they have EVER seen!! I also want to start the process going, as I have, well so far, very little faith in the competance of the Gyne department and don't want to be traipsing down from Edinburgh to have the procedure done etc cause they've taken so long to get their acts together!! Would also like to start the new chemo to see how I react to it and if I don't react well to get it sorted at the Hammersmith rather than in Edinburgh, cause lets face it, the Hammersmith is much better!
On the haematology front, everything is fine, white cell 4.9, platelets up a bit to 178, but it's all under control...!
As I finish house sitting tomorrow morning when I get on the train, I shan't be able to update my blog unless a miracle has happened at home with the laptops and broadband and let me log in, so shall write again as soon as I can....
I also hope that someone who reads this is having nice sunny weather, and not the rain that I am experiancing (every day...sun...summer???? Where is it??) If you are, tell me where you are, because I'm coming to stay!!
Lots of love etc etc
XXX
Thursday, 19 July 2007
A rather dramatic check up
Well dear readers I have had yet another check up yesterday, and for once it was rather exciting, well in as much as I was quite dramatic! So I shall tell you everything from the begining.
I had a phone call last Friday saying that I had been squeezed in to a clinic at Gynaecology to see the consultant Nick Pannay at 11 on Tues the 18th. I thought brillo, cause my haematology check up was at 11.45. So I had to get up extra early (7.30..YUK!) to get the 8.47 to arrive at Paddington at 09.50, because if I got the later train, I would have got in at 10.50 and no way in hell would I have got to the hospital by 11. As it turned out I should have got the later train anyways, and been able to travel for just under 16 quid including tube all day instead of 23 pounds something, and then put money on my Oyster (for those of you unaware of said Oyster card, it's a pay as you go pass for the tube and bus that's cheaper than buying tickets from machines, unless of course you get the train AND bus/tube for fifteen squids...) anyways, enough of the cost of public transport rant.
So I arrived at the hospital at about 5 to 11 and told the receptionist that I had an appointment at 11 etc etc and that I had been rung on Fri about it etc etc The 'kind and helpful' (my arse, one of THE most UNHELPFUl) person in reply said, you're not on the system and I don't know anything about this, which was the response to everything said when I have to repeat to various people infront of the recpetionist what was happening/had happened...great! I then go and sit and wait for it to be resolevd. I'm then told that Mr. Pannay doesn't know anything about me going to the clinic, when I'm booked in for the following tues (thank god I didn't cancel the orginal appointment when I was told I was squeezed into yesterdays clinic) and also that they don't have my notes. Can I go to Haematology and get them and take them back and then they MIGHT be able to see me.
I then trotted over to the wonderful, efficiant, organized receptionists at my beloved haematology, where after walking throught the door just a little flustered and hot with cardigan and pashmina flying all over the place, I was greeted with a 'hello Katherine...are you ok?'. I explained what whas going on, was told that Gynaecology did have my notes, they had collected them the previous fri and that they are generally a disorganized nightmare! And got on the phone to try and sort it out, rather than making me go all over the hospital to try and sort it out. As Gynaecology should have done in the first place rather than making me do it, when they were aware of the Leukaemia, and STIll sent me trotting! By this point it was 11.20 and I thought sod it, sat down in Haematology and spent the next couple of hours there!
So I still have my consultation on tues to discuss the removal of eggs to be frozen...
Right, so how was my blood count etc...oh this is where is gets a bit dramatic!
When having my blood taken I began to feel REALLY weak/dizzy/feint etc so said to the nurse. It was also at this point that the blood was, well not flowing very well into the tube thing and the nurse removed the needle and got me some water. Instead of feeling better, which I usually do if I feel feint. Now I am not one of those people who feints at blood test, and I thought this was rather odd. I told her that it may be because I was a bit hungry as I had been up for hours, and my breakfast on the train of 2 apples and a pear was a lot then, (at 9am) was probable not doing much at 12.30. I had also been eating brazil nuts just before my blood test, so was slightly confuzzeled. She decided to take my blood pressure which was somethin like 55 over 60 or something and promptly made me lie down on a bed and call another nurse as I think she was worried that it was so low(and that I hadn't collapsed and was worried that I was going to!) She then trotted off to get me a cup of tea, and a couple of buscuits. ( I love the staff in Haematology!!) After about 15/20 mins I was back to my usual self and she finished the blood test with me lying down....!!!
I then went back to the waiting room and then saw the consultant. I think I have now seen every consultant there! Unlike in Edinburgh, where I only see Pat Sheppard, at the Hammersmith I see all the team. My white cell count is 4, which is fine, my platelets were around 109. I say around because when I had the test, they all clotted together which is why the blood tricked so slowly. Due to this they had to re do that blood test and am awaiting a phone call to see what the actual count is, and if I have to adjust the cell killing drug I'm taking.
So that was my rather dramatic check up yesterday!
I think thats about it really. Panic not about my bodys attempt at feinting, am absolutely fine!!
Can't think of anything else of importance.
More on Tues or Wed after the IVF consutation!
Lots of love, smiles and laughter.
XXX
I had a phone call last Friday saying that I had been squeezed in to a clinic at Gynaecology to see the consultant Nick Pannay at 11 on Tues the 18th. I thought brillo, cause my haematology check up was at 11.45. So I had to get up extra early (7.30..YUK!) to get the 8.47 to arrive at Paddington at 09.50, because if I got the later train, I would have got in at 10.50 and no way in hell would I have got to the hospital by 11. As it turned out I should have got the later train anyways, and been able to travel for just under 16 quid including tube all day instead of 23 pounds something, and then put money on my Oyster (for those of you unaware of said Oyster card, it's a pay as you go pass for the tube and bus that's cheaper than buying tickets from machines, unless of course you get the train AND bus/tube for fifteen squids...) anyways, enough of the cost of public transport rant.
So I arrived at the hospital at about 5 to 11 and told the receptionist that I had an appointment at 11 etc etc and that I had been rung on Fri about it etc etc The 'kind and helpful' (my arse, one of THE most UNHELPFUl) person in reply said, you're not on the system and I don't know anything about this, which was the response to everything said when I have to repeat to various people infront of the recpetionist what was happening/had happened...great! I then go and sit and wait for it to be resolevd. I'm then told that Mr. Pannay doesn't know anything about me going to the clinic, when I'm booked in for the following tues (thank god I didn't cancel the orginal appointment when I was told I was squeezed into yesterdays clinic) and also that they don't have my notes. Can I go to Haematology and get them and take them back and then they MIGHT be able to see me.
I then trotted over to the wonderful, efficiant, organized receptionists at my beloved haematology, where after walking throught the door just a little flustered and hot with cardigan and pashmina flying all over the place, I was greeted with a 'hello Katherine...are you ok?'. I explained what whas going on, was told that Gynaecology did have my notes, they had collected them the previous fri and that they are generally a disorganized nightmare! And got on the phone to try and sort it out, rather than making me go all over the hospital to try and sort it out. As Gynaecology should have done in the first place rather than making me do it, when they were aware of the Leukaemia, and STIll sent me trotting! By this point it was 11.20 and I thought sod it, sat down in Haematology and spent the next couple of hours there!
So I still have my consultation on tues to discuss the removal of eggs to be frozen...
Right, so how was my blood count etc...oh this is where is gets a bit dramatic!
When having my blood taken I began to feel REALLY weak/dizzy/feint etc so said to the nurse. It was also at this point that the blood was, well not flowing very well into the tube thing and the nurse removed the needle and got me some water. Instead of feeling better, which I usually do if I feel feint. Now I am not one of those people who feints at blood test, and I thought this was rather odd. I told her that it may be because I was a bit hungry as I had been up for hours, and my breakfast on the train of 2 apples and a pear was a lot then, (at 9am) was probable not doing much at 12.30. I had also been eating brazil nuts just before my blood test, so was slightly confuzzeled. She decided to take my blood pressure which was somethin like 55 over 60 or something and promptly made me lie down on a bed and call another nurse as I think she was worried that it was so low(and that I hadn't collapsed and was worried that I was going to!) She then trotted off to get me a cup of tea, and a couple of buscuits. ( I love the staff in Haematology!!) After about 15/20 mins I was back to my usual self and she finished the blood test with me lying down....!!!
I then went back to the waiting room and then saw the consultant. I think I have now seen every consultant there! Unlike in Edinburgh, where I only see Pat Sheppard, at the Hammersmith I see all the team. My white cell count is 4, which is fine, my platelets were around 109. I say around because when I had the test, they all clotted together which is why the blood tricked so slowly. Due to this they had to re do that blood test and am awaiting a phone call to see what the actual count is, and if I have to adjust the cell killing drug I'm taking.
So that was my rather dramatic check up yesterday!
I think thats about it really. Panic not about my bodys attempt at feinting, am absolutely fine!!
Can't think of anything else of importance.
More on Tues or Wed after the IVF consutation!
Lots of love, smiles and laughter.
XXX
Saturday, 7 July 2007
A say in London
Well dear readers, am currently in London Town (well Tooting...is that actually in London...debatable!!!) staying with my darling sister, so am able to log in to my blog, woop!! (the laptop won't let me type in the title bar, hense the no name....pretend it's called 'Notes from London'.)
Had another check up last Wed, all is well. White cell count 4.9, which is apparently fine and not low and nothing to worry about. Apparently when it get's to about 0.01 you begin to worry...Platelets down to something like 380ish, can't really remember, but it's all good as everything is under control.
As it's sunny, yes, it's England, it's July and the sun is FINALLY here, Claudia is playing what she calls schpangle, yes, exactly. Similar what the fuck thoughts came to my mind as well. Not sure if I've spelt it correctly, but as it's a word she's blatently made up to refer to a type of music she doesn't know the coreect terminology for, I can spell it how I like!
I have an IVF appointment booked for the 24th, yes it is quite a long way away, so my consultant is trying to get me bumped up the list. I say good luck, because the receptionist I have had the pleasure of talking to 3 times, is the most unhelpful person I have EVER come across, and obviously doesn't listen as I had to explain something three times...or she's not that bright....
I might have stem cells taken which will be fun!! Or not...hooked up to a machine for about 3 hours. That's fine and potentially exciting, as long as it doesn't hurt! I have so far escaped the most painful thing that could have happened so far, a bone marrow test, and I aim to escape all things painful for as long as pos. Not sure about the huge fuck off mile long needle that will go into my ovary though.....
Anyways, enough of this talk of long needles, cause I know that if my dear papa is reading this, he will be sitting down and slightly green...!!!!!
What else, I don't really know. Another check up in about 10 days. Been riding alot, have some exciting house sitting coming up! TV, WOOP!!! So happy!!! Have a friends birthday dinner party tonight, and that's about it really. Nothing of interest comes to mind. Although to be fair, I don't always put things of interest on this!!
As Claudia is up and about, and we need to decide what to do today, I shall bugger off!!
Love, laughter and smiles as usual!
XXX
Had another check up last Wed, all is well. White cell count 4.9, which is apparently fine and not low and nothing to worry about. Apparently when it get's to about 0.01 you begin to worry...Platelets down to something like 380ish, can't really remember, but it's all good as everything is under control.
As it's sunny, yes, it's England, it's July and the sun is FINALLY here, Claudia is playing what she calls schpangle, yes, exactly. Similar what the fuck thoughts came to my mind as well. Not sure if I've spelt it correctly, but as it's a word she's blatently made up to refer to a type of music she doesn't know the coreect terminology for, I can spell it how I like!
I have an IVF appointment booked for the 24th, yes it is quite a long way away, so my consultant is trying to get me bumped up the list. I say good luck, because the receptionist I have had the pleasure of talking to 3 times, is the most unhelpful person I have EVER come across, and obviously doesn't listen as I had to explain something three times...or she's not that bright....
I might have stem cells taken which will be fun!! Or not...hooked up to a machine for about 3 hours. That's fine and potentially exciting, as long as it doesn't hurt! I have so far escaped the most painful thing that could have happened so far, a bone marrow test, and I aim to escape all things painful for as long as pos. Not sure about the huge fuck off mile long needle that will go into my ovary though.....
Anyways, enough of this talk of long needles, cause I know that if my dear papa is reading this, he will be sitting down and slightly green...!!!!!
What else, I don't really know. Another check up in about 10 days. Been riding alot, have some exciting house sitting coming up! TV, WOOP!!! So happy!!! Have a friends birthday dinner party tonight, and that's about it really. Nothing of interest comes to mind. Although to be fair, I don't always put things of interest on this!!
As Claudia is up and about, and we need to decide what to do today, I shall bugger off!!
Love, laughter and smiles as usual!
XXX
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