Dear All,
Right....where to start???
Good news.....don't think I'm sitting exams after Easter which is a HUGE relief. This is because about 3 week ago I went to see my DOS (director of studies...he's my tutor to look after me during my university career) and told him I felt like quitting cause I was so exhaustedfrom spending 10 hours a day reading in the library for essays, and didn't know how I'd cope with exmas. The 2 exams from this term I'd probably be ok with, but it was the 2 exams from courses 18 months ago that I was really worried about. He also thought that I was stopping treatment any minute now. Not entirely sure where he got that idea from, possibly cause I've always been so upbeat and positive...anyways, he said that he didn't want me going through the stress and pressures of exams, and as long as my consultant writes a letter saying that, he can get things put in place that mean that I don't have to sit the exmas.
Whilst in Egypt he got on the case, and has got it so I'm assessed 100% on coursework, which is fucking fantastic!! It means that after Easter I have officially finished uni, WOOP WOOP!! And I graduate on Wednesday 25th June. Unfortuately not with all my Histoy of Art buddies, as they have a different ceremony as they are getting the full MA Hons, but I'm on the same day, so hopefully they will wait for me outside after my graduation as I grauate in the afternoon and they are in the morning.
It's really quite bizarre that I am so close to the end, as it only feels like yesterday I was terrified in the car pulling up to Pollock (the halls of residence) to begin. It's also great that a large proportion of my really god friends, are those who I met in the begining, so they have been with me from the start through everything.
On the Egypt front, it was so amazing. The hotel in Luxor was lush! The people are so friendly and happy. The temples were (lets use my favourite word again...) amazing. And it was HOT!! 30+ degrees every day. My lizard like body loved every second of it. I want to go back as soon as possible. I loved it so much I started to cry as the plane took off....Mummy and Daddy weren't entirely sure what to do!!!
On the health front I have the lurgey that is going round, so have a stunning temperature and can't stop sneezing!! The hospital aren't bothered unless the temperature goes up to 38, and at the mo it's betweern 37.2-37.4, so fingers crossed it doesn't. It is hindering my ability to work though, which is a bit of an arse...worst comes to worse I have to get extentions, but nevermind.
Hmmm....what else?? Not sure, thinks that about it I think. Not looking forward to my bone marrow test which I have to have when I get back, cause it's going to hurt SO MUCH!! I do have a local anasthetic..and also a huge great big needle going into my hip! I'm having it to see if if I'm in remission I think...can't really remember, will find out more when I have it. I'm having it when I get back to uni after Easter, which will also prob be the next time that I blog as we all know I can't at home. Am only going home for about 10 days, and won't be having any check ups at home, so doubt there would be anything to blog about anyway!!
Right, me thinks this is long enough!
Hope all's well with everyone,
Lots of love, laughter and smiles,
XXX
Sunday, 16 March 2008
Friday, 14 March 2008
Uber quick
Dear All,
Have to be uber quick as have to go to a lecture in a min.
Egypt= fucking AMAZING!!! Didn't want to come home, so started to cry when the plane took off....good!
Health= platelets 70 (is that down from last time??? Can't remember) so the chemo dosage is not going to be increased. White count 4.3,....got to have a bone marrow test to see if I'm in remission or something, can't actually remember....when I have it will ask!! (have been sneezing and have a sore throat, I hope I don't succumb ( is that spelt correctly??) to it, as have to write 4,000 words next week. Also haven't had a cold in sooooooooooooooooooooooo long, and want to keep the record that way!!
Right, am off, longer blog this evening or tomorrow with full update on Egypt, uni and other odds and sods!!
Lots of love, laughter and smiles,
XXX
Have to be uber quick as have to go to a lecture in a min.
Egypt= fucking AMAZING!!! Didn't want to come home, so started to cry when the plane took off....good!
Health= platelets 70 (is that down from last time??? Can't remember) so the chemo dosage is not going to be increased. White count 4.3,....got to have a bone marrow test to see if I'm in remission or something, can't actually remember....when I have it will ask!! (have been sneezing and have a sore throat, I hope I don't succumb ( is that spelt correctly??) to it, as have to write 4,000 words next week. Also haven't had a cold in sooooooooooooooooooooooo long, and want to keep the record that way!!
Right, am off, longer blog this evening or tomorrow with full update on Egypt, uni and other odds and sods!!
Lots of love, laughter and smiles,
XXX
Friday, 22 February 2008
Blah
Dear All,
Am too tired to think of a title for this blog, hense the name!
Right, had a check up yesterday, platelets up to 103, so that's good. I did ask why they aren't settling down, and didn't really get an answer other than because 'the drugs are working', but nevermind. That's possibly because Dr. Shepherd doesn't really know, and that answer is better, in her mind than 'I don't know'!
White count is up oh so slightly to 4.8, instead of the 4.4 is has been for so long. This may have been due to the injections I had on Monday because I'm going to Egypt on the 3rd March!!! I KNOW!!! The parentals have decided that I need a proper break with doing nothing at all. I of course didn't like to tell them otherwise! The rise may also be because I'm so utterly exhausted from all this essay malarkey. It's NOT fun! I'm about half way through so that's good.
I saw my DOS (Director of Studies) today, to tell him that I'm defiantely leaving at the end of this year, so he has to sort out the paper work for the general degree. Although he kept on referring to it as the B.A, so maybe I'm getting more...who knows. A degreee is still a degree at the end of the day, and it means that the past 3/4 years haven't been for nothing. He was really great today, telling me how much he admires me, and that I really deserve to end up wth something at the end of this year. I was telling him how I get so tired, and everything takes so much longer, and he thinks that I possiby shouldn't sit the exmas at the end of this year, which I agree with. To be honest, I don't think I'm up to the stress of revision, and don't think I have the energy I'd need to revise efficiently, effectively and do well, so it's comforting knowing he's 110% behind me, and on my side. I think they will look at essay marks, and see what my average has been since I started and see what was most likely that I would have ended up with. Which is good, as my marks were always a good 2.1.
What else, hmmm, am serisouly looking forward to getting away for a week, not only to the sun and heat, but to know that I don't have to go to the sodding library for hours every day.
I just thought fo something, but it's gone....hmmmm........nope, not there!
Thank you to all who have donated money to Milo and the marathon since my last message. The response has been amazing!!
Am off to get some lunch, will write again if I remember anything else. Oh yes, after easter my chemo dosage is going to be increased again to 100 mg to see what happens.
Hope all is well with everyone!
Lots of love, laughter and smiles,
XXX
Am too tired to think of a title for this blog, hense the name!
Right, had a check up yesterday, platelets up to 103, so that's good. I did ask why they aren't settling down, and didn't really get an answer other than because 'the drugs are working', but nevermind. That's possibly because Dr. Shepherd doesn't really know, and that answer is better, in her mind than 'I don't know'!
White count is up oh so slightly to 4.8, instead of the 4.4 is has been for so long. This may have been due to the injections I had on Monday because I'm going to Egypt on the 3rd March!!! I KNOW!!! The parentals have decided that I need a proper break with doing nothing at all. I of course didn't like to tell them otherwise! The rise may also be because I'm so utterly exhausted from all this essay malarkey. It's NOT fun! I'm about half way through so that's good.
I saw my DOS (Director of Studies) today, to tell him that I'm defiantely leaving at the end of this year, so he has to sort out the paper work for the general degree. Although he kept on referring to it as the B.A, so maybe I'm getting more...who knows. A degreee is still a degree at the end of the day, and it means that the past 3/4 years haven't been for nothing. He was really great today, telling me how much he admires me, and that I really deserve to end up wth something at the end of this year. I was telling him how I get so tired, and everything takes so much longer, and he thinks that I possiby shouldn't sit the exmas at the end of this year, which I agree with. To be honest, I don't think I'm up to the stress of revision, and don't think I have the energy I'd need to revise efficiently, effectively and do well, so it's comforting knowing he's 110% behind me, and on my side. I think they will look at essay marks, and see what my average has been since I started and see what was most likely that I would have ended up with. Which is good, as my marks were always a good 2.1.
What else, hmmm, am serisouly looking forward to getting away for a week, not only to the sun and heat, but to know that I don't have to go to the sodding library for hours every day.
I just thought fo something, but it's gone....hmmmm........nope, not there!
Thank you to all who have donated money to Milo and the marathon since my last message. The response has been amazing!!
Am off to get some lunch, will write again if I remember anything else. Oh yes, after easter my chemo dosage is going to be increased again to 100 mg to see what happens.
Hope all is well with everyone!
Lots of love, laughter and smiles,
XXX
Sunday, 17 February 2008
We have hit £1,000
Dear All,
Just an uber quick note to say a big thank you to all of you have donated. We have hit the £1,000 and I believe we are well on our way to hit the £5,000 target which Milo has set. ( At least I think he has anyway!!)
To all of you who have donated, an email of thanks is on it's way very, very soon!! I'm sorry to say that off line donations can't be named, I hadn't realised this. If this puts peope of writing a cheque, the online dontation site is very, very easy to use!! Just go to www.justgiving.com/miloruane1 and follow the directions!!
Due to the cheque writers being unnamed, I know who you are, and am ever grateful for the money!! Recognition is on its way...I hope you don't mind it being through an email, as I know it will get to your straight away, and because I'm too lazy/swamped with work to go and buy nice writing paper!
So much love to you all (and to those of you who feel quilty for not donating...GOOD!!! Do it NOW!!!)
XXX
Just an uber quick note to say a big thank you to all of you have donated. We have hit the £1,000 and I believe we are well on our way to hit the £5,000 target which Milo has set. ( At least I think he has anyway!!)
To all of you who have donated, an email of thanks is on it's way very, very soon!! I'm sorry to say that off line donations can't be named, I hadn't realised this. If this puts peope of writing a cheque, the online dontation site is very, very easy to use!! Just go to www.justgiving.com/miloruane1 and follow the directions!!
Due to the cheque writers being unnamed, I know who you are, and am ever grateful for the money!! Recognition is on its way...I hope you don't mind it being through an email, as I know it will get to your straight away, and because I'm too lazy/swamped with work to go and buy nice writing paper!
So much love to you all (and to those of you who feel quilty for not donating...GOOD!!! Do it NOW!!!)
XXX
Thursday, 7 February 2008
A speedy check up
Dear all,
Well today I believe I had my fastest check up to date. In and out in....wait for it.....40 minutes!!! Definately one for the guniess book of records!! It was because my consultant was away, so only special people went today to see her stand in.
Well just for a change, the platelet count has not behaved itself and has dropped again, to 93. White count the same at 4.4, so thats good.
I have another check up in two weeks.
Uni is going well, its all a bit exhausting doing essays etc, but it's nice to be using my brain and to be learning stuff again!!
I also wanted to say a big thank you to everyone who has donated money so far to Milo running the marathon. We have to date raised just over £700, which is amazing!! Claudia's (my big sister for those of you who don't know my family) work, Able and Cole (an organic food company based in London), has also donated £525 which will be registered with the just giving site in March at somepoint, which is pretty fucking fantastic!! So we are well on the way to raise the (I think I'n correct in saying) £5,000 that Milo wants to raise!
Hope all is well with everyone!
Until the 20 something of Feb!! Or even the 20th, not sure what the date is in 2 weeks!!
Lots of Love, laugher and smiles!
XXX
p.s me and Sarah (my beloved flatty) have decided to give up drinking during the week for lent....I'll keep you all posted on how it goes!! We were going to give it up full stop, but knew that that was just a silly idea!!
Well today I believe I had my fastest check up to date. In and out in....wait for it.....40 minutes!!! Definately one for the guniess book of records!! It was because my consultant was away, so only special people went today to see her stand in.
Well just for a change, the platelet count has not behaved itself and has dropped again, to 93. White count the same at 4.4, so thats good.
I have another check up in two weeks.
Uni is going well, its all a bit exhausting doing essays etc, but it's nice to be using my brain and to be learning stuff again!!
I also wanted to say a big thank you to everyone who has donated money so far to Milo running the marathon. We have to date raised just over £700, which is amazing!! Claudia's (my big sister for those of you who don't know my family) work, Able and Cole (an organic food company based in London), has also donated £525 which will be registered with the just giving site in March at somepoint, which is pretty fucking fantastic!! So we are well on the way to raise the (I think I'n correct in saying) £5,000 that Milo wants to raise!
Hope all is well with everyone!
Until the 20 something of Feb!! Or even the 20th, not sure what the date is in 2 weeks!!
Lots of Love, laugher and smiles!
XXX
p.s me and Sarah (my beloved flatty) have decided to give up drinking during the week for lent....I'll keep you all posted on how it goes!! We were going to give it up full stop, but knew that that was just a silly idea!!
Friday, 25 January 2008
marathon donating link
Dear all,
Firstly the link is now up to donate online. It is:
Justgiving - donate to charity and raise funds online - Milo Ruane london Marathon'08 - for sis!
http://justgiving.com/miloruane1
So please start to donate, even if it's only a couple of quid!
Also have a check up yesterday,
White count 4.4 (seems to have settled there....)
Platelets 128, so that's good, seems to be on the rise!
Leukaemic level has gone up a bit, from 4.44 to 7%, but the consultant thinks that I had the last level test when I was on a higher dosage of the chemo, and is not concerned about the rise, as it's only very slight.
Hope all's well with everyone!
Lots of love, laughter and smiles! (the bigger the donations, the more laughter and more smiles, and no I promise, that's NOT emotional blackmail!!! He he he!)
XXX
Firstly the link is now up to donate online. It is:
Justgiving - donate to charity and raise funds online - Milo Ruane london Marathon'08 - for sis!
http://justgiving.com/milo
So please start to donate, even if it's only a couple of quid!
Also have a check up yesterday,
White count 4.4 (seems to have settled there....)
Platelets 128, so that's good, seems to be on the rise!
Leukaemic level has gone up a bit, from 4.44 to 7%, but the consultant thinks that I had the last level test when I was on a higher dosage of the chemo, and is not concerned about the rise, as it's only very slight.
Hope all's well with everyone!
Lots of love, laughter and smiles! (the bigger the donations, the more laughter and more smiles, and no I promise, that's NOT emotional blackmail!!! He he he!)
XXX
Saturday, 19 January 2008
A big thank you
Dear all,
Just wanted to say a big thank you to everyone for all their support and emails and everything in the past year. Believe it or not, it's a year today that I was diagnosed! Time flys by!
As always, lots of love, smiles and laughter,
XXX
Just wanted to say a big thank you to everyone for all their support and emails and everything in the past year. Believe it or not, it's a year today that I was diagnosed! Time flys by!
As always, lots of love, smiles and laughter,
XXX
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