Tuesday, 5 April 2011

PLATELETS ARE NORMAL!!! (well normal ish)

Well my little bloglets,

It's quite late (10.45pm) and I have a day of revision ahead of me tomorrow, so should be asleep, but am not tired, so thought I'd do a post from bed.

So I have some exciting news, I had a check up last week and after being on the new dosage for a couple of weeks my platelet count was 112, so I'm pretty fucking happy about that.  They are still lower than normal, but considering the last time I was on this dosage they went down to 22, I think they are doing pretty bloody well!

Unbelievably my university year has ended, and all that's left are 3 exams on the 5th, 9th and 13th May so revision has started, well it starts tomorrow until Friday as I'm going to Paris on Saturday until the following Wednesday as I was meant to be watching Crouch (little blonde one I interview in my video blogs who has a hot water bottle on her shoulder) run the Paris Marathon for TCT, but she has destroyed her knee so can't run it.  This means we are now just going for a jolly, which I'm just as happy with, although it means no revision for 5 days.....

I think I put on here that my Leukaemic rate is down to 0.017%, so hopefully it will be even lower now.

My latest video blog is up:

And ummm, don't know what else really.  I've just had 5 days a home as was really quite unwell with what I termed 'end of termitus' which has now gone.  I also started to worry a bit as my legs have been achey/hurting as they did when my body started to react to the skanky manky chemo that I was on first, but I think it was just the virus as they are feeling much better now, thank fuck!

I spoke at a thing for TCT last week and I think something like £7,000 (or was it £9,000 can't remember!) was given and of course I would like to think it was all down to me!  Also makes up for my volunteering at the Royal Albert Hall as I think I only got about £6!  Obviously it will be that £6 which makes all the difference!!!

I'm sure there were loads of things that I was going to mention, but can't remember now.  Have been a bit down recently, but hopefully am over that now.  It sometimes creeps up on me, and I think that it can be the side affect of a long term illness/treatment, but it was ok as I was at home, so could have a cry about everything and how shit it can be and how fed up I get and my little mummy was there for me.  In the beginning all those millions of years ago, I always put on a happy face as I felt that I couldn't feel miserable/upset/frustrated as I felt that I had to make sure everyone else was ok, and I had to be upbeat all the time because if I wasn't, then obviously everyone else would fall apart!!  It has taken me both time, and talking mainly to my mother about it that has taught me that I am allowed to have down days when I can be fucked off with about what I've been through and what I'm going through and that it sometimes feel like it will never end and I don't have to fight it.  I think this has been a valuable lesson as it doesn't do anyone any good keeping emotions bottled up.  I also don't think I've ever really talked about it on here either...

Anyways, can't think of anything else to mention at the moment.  If any of you do watch my video blogs, check out the one called 'Not Actually a Pain in the Neck'.  It's by a buddy of mine, Tom, and it's a fucking brilliant presentation.  I think it's possibly better than anything I do, I know, I know, I can hear you all saying 'noooooooooooooooo, not possible' but I think it may be.  Having said that, I've never been asked to do a formal presentation (hint hint if anyone from TCT is reading this) so I don't know how mine would be.  Anyways, have a look if you fancy it.

Right, been doing this for half an hour now, so really should go to bed otherwise my day of revising Anatomy and Physiology tomorrow is not going to be as effective as I would like.

Right, lots of love, laughter and smiles, and fucking well start to follow me you buggers!!

1 comment:

  1. Hi Katie,
    My name is Sara Mulvanny and i just wanted to say hi after watching your video diaries on jimmy teens. I'm 23 and was diagnosed with chronic myeloid leukaemia in July last year. I'm also on dasatinib and on a slightly lower dose of 80mg after my platelets kept crashing (sound familiar?!) it's really nice to find someone else going through the same thing and I'm very happy you are doing so well- I'm not as far down the line as yourself but things seem to be going in the right direction. You can find me on Facebook if you ever fancy having a chat! Best wishes, Sara x