Dear all,
Sorry for being so quiet, for some reason I can't log into my blog at home, so I am using a laptop very briefly in Mummys office before I get all my hair cut off.
been off the chemo for a week due to pain, back on tonight, fingers crossed it all goes ok!! Check up on the 17th April and that's about it.
Having issues with uni, so watch this space about if I go back etc etc etc
Lots of loce laughter and smiles as usual!!
XXX
Wednesday 28 March 2007
home sweet home
Dear all,
I know I have been neglecting you, and I knows its annoying when you want to know how I am, but I’ve been having a bit of a rough time with side affects recently, and the thought of doing anything has just been unbearable. The good news though is that I have been taken off the Glivec for a week, so I am nearly pain free, woo!!! I have no new cell counts as I haven’t had a check up recently. I am now home, and have been for a week which is truly wonderful as I am with the rentals, and the cats! I tell you what, if you ever feel a bit off, and you have a cat, cuddle it, if you don’t have one, go to a friends who does and cuddle theirs…it does wonders!
Hmmm, news, news, news, think, think, think. Well ummm,……had 2 friends come over yesterday which was great as I haven’t really seen anyone since coming home, so it was nice to have a chat and catch up with the gossip…me! gossip! NEVER!!! (ok, well maybe a little bit, but I’m very good at keeping my mouth shut, so fret not!!)
What else, I don’t know, I was really in the typing mood a minute ago, but it has flown off.
I having my next check up in a week or so I do believe at the Hammersmith Hospital, so shall either get all my hair chopped then, or maybe before hand. Claudia was trying to convince me to get it cut REALLY short and choppy, but I’m no way brave enough to do that, so will go for a straightforward bob I think, but with some shaping round the face. Am going to talk to the hairdresser about it. On a hair note, it is getting a bit thicker again which is great, because for a little but I was really rather worried about the hair situation, not only with the amounts falling out (that still happens, but I’m not as worried as I’m obviously not going to lose it) and at how thin it was, but thankfully, that is slowly changing!
I’m trying to think if there is anything else of interest to say, don’t want to bang on about how little I’ve been doing as it’s dull!
Nope, nothing is happening. Well at least I have written something and that you know that generally everything is ok!
Ooh, I know, the weekend before I came home, Mummy and Claudia came up to see me and we went to the Pixar exhibition. I know that it was in London, so probably won’t go back, but if any of you are somewhere and it’s on, go and see it, it’s amazing!! Even if you are not a huge fan of things like Finding Nemo, and Toy Story, it’s still am amazing thing to go to!
Well that’s it for today me thinks, unless I remember something mind blowingly fantastic to say (the goldfish continues to act as my memory) , I doubt it, but you never know!!
Lots of love, smiles and laughter,
XXX
I know I have been neglecting you, and I knows its annoying when you want to know how I am, but I’ve been having a bit of a rough time with side affects recently, and the thought of doing anything has just been unbearable. The good news though is that I have been taken off the Glivec for a week, so I am nearly pain free, woo!!! I have no new cell counts as I haven’t had a check up recently. I am now home, and have been for a week which is truly wonderful as I am with the rentals, and the cats! I tell you what, if you ever feel a bit off, and you have a cat, cuddle it, if you don’t have one, go to a friends who does and cuddle theirs…it does wonders!
Hmmm, news, news, news, think, think, think. Well ummm,……had 2 friends come over yesterday which was great as I haven’t really seen anyone since coming home, so it was nice to have a chat and catch up with the gossip…me! gossip! NEVER!!! (ok, well maybe a little bit, but I’m very good at keeping my mouth shut, so fret not!!)
What else, I don’t know, I was really in the typing mood a minute ago, but it has flown off.
I having my next check up in a week or so I do believe at the Hammersmith Hospital, so shall either get all my hair chopped then, or maybe before hand. Claudia was trying to convince me to get it cut REALLY short and choppy, but I’m no way brave enough to do that, so will go for a straightforward bob I think, but with some shaping round the face. Am going to talk to the hairdresser about it. On a hair note, it is getting a bit thicker again which is great, because for a little but I was really rather worried about the hair situation, not only with the amounts falling out (that still happens, but I’m not as worried as I’m obviously not going to lose it) and at how thin it was, but thankfully, that is slowly changing!
I’m trying to think if there is anything else of interest to say, don’t want to bang on about how little I’ve been doing as it’s dull!
Nope, nothing is happening. Well at least I have written something and that you know that generally everything is ok!
Ooh, I know, the weekend before I came home, Mummy and Claudia came up to see me and we went to the Pixar exhibition. I know that it was in London, so probably won’t go back, but if any of you are somewhere and it’s on, go and see it, it’s amazing!! Even if you are not a huge fan of things like Finding Nemo, and Toy Story, it’s still am amazing thing to go to!
Well that’s it for today me thinks, unless I remember something mind blowingly fantastic to say (the goldfish continues to act as my memory) , I doubt it, but you never know!!
Lots of love, smiles and laughter,
XXX
Thursday 8 March 2007
Last check up before coming home for Easter
Well hello, yes I'm back, sorry to have been neglecting you all this last week or so, I am crap, I have no excuse, and yeah.
Soooooo had a check up this morning, white blood cell count down to 15.7, woo, ,gone down a whole .3 in two weeks!!! I know, not quite the big drop compared to previous weeks, but I guess it's cause there are far fewer bad cells, so the drop will be far less impressive. I asked today what my actual count when I went in and it was 399!!! Have I mentioned that I was only a couple of days away from being a 999 call?? If yes, sorry for repeating myself, if not, well I shall tell you now. I have been told that if I hadn't gone to the doctors when I was forced to by my flatty, I would, well have collapsed and not been able to move, but I would have been rushed in to hospital in an abulance, with the siren going and everything!!!! I'm SOOOOOOOOOOOOO upset that I missed out on that!!! How much more dramatic would my story be?!?!?!?!?! AND I would have been put on oxygen, grrrr, the things I miss out on!!! Apparently I also should have had a plastic bracelet thing with my name and age on when I was in the hosptial, and didn't get one, sob, but it's all good cause my student nurse buddy is going to steal me one, he he he....no it's not really theft from the government as it's NHS property, cause I didn't get one when I should have done!!!
Anyways moving on swifty!!!
So um yeah, what else. No one came up last weekend to see me, sob, wail, moan, but to be honest had a nice time with all my buddies up here, so wasn't really affected by it! had mi pa up the weekend before and had a luurverly time, also the clothes present fairy came with him which was great! Did not a lot with him, had a nice luch party on the sun with 9 of us and everyone was very impressed with the Kevlas cooking!!! what else? ummm, la la la, got given a filofax, I think that might have been previously mentioned, but I'm still elated with that, along with beautiful little lovely wonferful new laptop!!!
Oh yes, have decided that I'm going to cut my hair, for those of you who haven't seen me in a long time, will be like, oh, that's nice, cheers for sharing (what a bloody dull think to mention)! I am mentioning it cause my hair is sooooooooooooooooooooooo long, way past the botton of my shoulder blades, and I'm going to get it chopped to in between the bottom of my ear and jaw, so it is actually quite a big thing! The reason for deciding this is is because it does fall out quite a lot, and it's really thin (compared to how it used to be, only I notice this...) so thought if I lop it all off it might grow back wavy/curly (fingers crossed) and can grow back (fingers crossed) nice and thick like it used to be!
There was something else that I was about to say, but as usual it has gone!
Mummy and Claudia are up this weekend which will be really nice and then I'm home next fri or sat. I think my body is telling me that I'm doing too much. The pain is not great and constant, so I will go home, lie on the sofa with my cat and so sweet F A !! If any of you have arthritus and you have shooting pain in the joints, i sympathise with you like you wouldn't believe!! It SUCKS!!
So yeah, I think that's all, oh I've put on weight which has really pissed me off, it's all of about 2 kilos, 4.4 pounds, which I know isn't a lot, and it probably a good thing, but I would much rather that I hadn't, so I think the days of eating cake all day, have sadly gone!
Shall blog again this week if I think of anything else, ooh, wont be having another check up for about a month, and will be seen by a specialist at the Hammersmith hospital as I'm obviously not just going to pop up to the Burg to have a check up when I'm 400 miles away!
Lots of love, smiles and laughter,
XXX
Soooooo had a check up this morning, white blood cell count down to 15.7, woo, ,gone down a whole .3 in two weeks!!! I know, not quite the big drop compared to previous weeks, but I guess it's cause there are far fewer bad cells, so the drop will be far less impressive. I asked today what my actual count when I went in and it was 399!!! Have I mentioned that I was only a couple of days away from being a 999 call?? If yes, sorry for repeating myself, if not, well I shall tell you now. I have been told that if I hadn't gone to the doctors when I was forced to by my flatty, I would, well have collapsed and not been able to move, but I would have been rushed in to hospital in an abulance, with the siren going and everything!!!! I'm SOOOOOOOOOOOOO upset that I missed out on that!!! How much more dramatic would my story be?!?!?!?!?! AND I would have been put on oxygen, grrrr, the things I miss out on!!! Apparently I also should have had a plastic bracelet thing with my name and age on when I was in the hosptial, and didn't get one, sob, but it's all good cause my student nurse buddy is going to steal me one, he he he....no it's not really theft from the government as it's NHS property, cause I didn't get one when I should have done!!!
Anyways moving on swifty!!!
So um yeah, what else. No one came up last weekend to see me, sob, wail, moan, but to be honest had a nice time with all my buddies up here, so wasn't really affected by it! had mi pa up the weekend before and had a luurverly time, also the clothes present fairy came with him which was great! Did not a lot with him, had a nice luch party on the sun with 9 of us and everyone was very impressed with the Kevlas cooking!!! what else? ummm, la la la, got given a filofax, I think that might have been previously mentioned, but I'm still elated with that, along with beautiful little lovely wonferful new laptop!!!
Oh yes, have decided that I'm going to cut my hair, for those of you who haven't seen me in a long time, will be like, oh, that's nice, cheers for sharing (what a bloody dull think to mention)! I am mentioning it cause my hair is sooooooooooooooooooooooo long, way past the botton of my shoulder blades, and I'm going to get it chopped to in between the bottom of my ear and jaw, so it is actually quite a big thing! The reason for deciding this is is because it does fall out quite a lot, and it's really thin (compared to how it used to be, only I notice this...) so thought if I lop it all off it might grow back wavy/curly (fingers crossed) and can grow back (fingers crossed) nice and thick like it used to be!
There was something else that I was about to say, but as usual it has gone!
Mummy and Claudia are up this weekend which will be really nice and then I'm home next fri or sat. I think my body is telling me that I'm doing too much. The pain is not great and constant, so I will go home, lie on the sofa with my cat and so sweet F A !! If any of you have arthritus and you have shooting pain in the joints, i sympathise with you like you wouldn't believe!! It SUCKS!!
So yeah, I think that's all, oh I've put on weight which has really pissed me off, it's all of about 2 kilos, 4.4 pounds, which I know isn't a lot, and it probably a good thing, but I would much rather that I hadn't, so I think the days of eating cake all day, have sadly gone!
Shall blog again this week if I think of anything else, ooh, wont be having another check up for about a month, and will be seen by a specialist at the Hammersmith hospital as I'm obviously not just going to pop up to the Burg to have a check up when I'm 400 miles away!
Lots of love, smiles and laughter,
XXX
Sunday 4 March 2007
A tiny post
I know I promised that I would write yesterday and that it would be a nice long lovely happy blog, and I know I promised someone I would write a poem but to be honest, I still hurt, have been to an exhibition AND Tesco, ooh and managed to spend very little! Anyways so I'm very tired with nadda to say really....will blog when have more energy, sorry to be so rubbish! Am home for Easter on the 26th March, so if anyone wants to see me, let me know!
XXX
XXX
Friday 2 March 2007
not very long, more tomorrow
Dear all,
Well I'm afraid there are no medical updates this week as I haven't had a check up which is good as it shows that everything is getting much better and I don't have to be monitered so closely.
Not much to report at this moment in time, will probably post again tomorrow as I'm tired and really can't be arsed! Been feeling the side affects quite badly in the last few days.....where's the morphine I sobbed into my pillow!! Well not quite, but wasn't far from it! Also my beautifully worked out plan about exams and what the uni would let me do has not turned out how I wanted it to, so get the feeling a rant is coming on, and I don't want to depress my beloved readers so shall shit up.
There is good news this week, I am typing away on a BEAUTIFUL new laptop! Woo, thank you West Berkshire council. I also got a filofax, thank you cancer charity type people and what else, ooh yes, got clothing and the like from rents this week, so not all is bad! There was something else, but I can't remember!! ....have remembered, I managed to get all my music off my ipod onto my new laptop, for those of you who understand how hard that is, feel free to think how wonderous and clever I am...if anyone else wants to do this, let me know and I'll tell you how I did it!!
I'm going to bugger off, but I promise a more light hearted happy and funny (well I normally find what I write funny) tomorrow.
Lots of love, smiles and laughter.
XXXXXXXXXXXXX
Well I'm afraid there are no medical updates this week as I haven't had a check up which is good as it shows that everything is getting much better and I don't have to be monitered so closely.
Not much to report at this moment in time, will probably post again tomorrow as I'm tired and really can't be arsed! Been feeling the side affects quite badly in the last few days.....where's the morphine I sobbed into my pillow!! Well not quite, but wasn't far from it! Also my beautifully worked out plan about exams and what the uni would let me do has not turned out how I wanted it to, so get the feeling a rant is coming on, and I don't want to depress my beloved readers so shall shit up.
There is good news this week, I am typing away on a BEAUTIFUL new laptop! Woo, thank you West Berkshire council. I also got a filofax, thank you cancer charity type people and what else, ooh yes, got clothing and the like from rents this week, so not all is bad! There was something else, but I can't remember!! ....have remembered, I managed to get all my music off my ipod onto my new laptop, for those of you who understand how hard that is, feel free to think how wonderous and clever I am...if anyone else wants to do this, let me know and I'll tell you how I did it!!
I'm going to bugger off, but I promise a more light hearted happy and funny (well I normally find what I write funny) tomorrow.
Lots of love, smiles and laughter.
XXXXXXXXXXXXX
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