Well I can't believe that 2010 is nearly up, and fuck, what a year it has been!!! I've gone from employed and having a quarter life crisis not knowing what I want to do, so resigned from my job. Was unemployed for a bit, then employed again and now a student (again!). That is a seriously short way to sum up the year considering it has involved a court case, moving flat, applying to Uni, becoming too old for the Teenage Cancer Trust (shhhh), going to 11 Downing Street, meeting Dave Grohl (ahhh, swoon, ahh, swoon, blush, blush, blush!) having my first TCT buddy die, having a Healing Journey aka my cancer course die (this only happened in the last week so more on this in a bit), having my Godfather diagnosed with cancer, Grandfather was pretty ill, I'm sure it was cancer but don't want to say it with authority in case it wasn't....but I'm 99% is was....yes, I'm a shite grandchild....my platelets being normal for the first time in nearly 4 years, was in a relationship (very briefly, and don't think I mentioned it on here) for the first time in ooooh, a bloody long time, hang on and I'll work it out.......2 years, and am now not (and haven't been for nearly a year), little brother moving to Singapore for 3 years...so it's been quite a year! I've also been better at doing this blog, started video blogs for jimmyteens.tv and everything else I can't think of at this moment and I've probably mentioned anything of great significance on here anyways.
So at the moment I am at the rentals for a couple of weeks over Christmas and til New Years (still don't know what to do, suggestions anyone??) which is a good thing because when I was on my home on Saturday I left snow in London and was told with slight smugness from my Mother that there wasn't any at home. Well, that wasn't the case 3 hours later. My father and I nearly got stuck in the snow coming home...thank you kind resident of Brantham who gave the car a shove! I think there was something mental like 6 inches in half an hour. Which to be honest made me VERY excited as I LOVE the snow and there hasn't been enough in London to satisfy my love for snow. It now has been, and to make it even better, lots of the snow has stayed perfect and NOT walked on or turned into snowmen etc which makes me even happier. I HATE it when the snow gets ruined. On Sunday we had to walk to the local shop over snowy fields (cue 'ahhh') as the car was snowed in. On the walk I had a phone call from a Healing Journey friend (it's the course I've been doing for coming up for 2 years run at the local Macmillan funded (I think) centre in Clapham). The course is amazing and technically over, but a few of us from my course and the group who did it before us were not ready for it to be over, so one of the facilitators from my course very kindly gives up an evening of his time once a month and we still meet. Anyways one of the group, a member from my course, had breast cancer and it came back in her bones and spread to her liver etc and I knew everything wasn't going brilliantly, but she was so strong and brave and positive and upbeat and never let on how bad it was, and to my great sadness Liane rang me to tell me that she had died last week. It was a shock as I didn't think things were that bad, but on the flip side Neelam died being strong and still looking well and it was quick, and she didn't have to suffer for a long time. Cancer is really shit. I've had enough of people dying or being diagnosed with cancer. And I'm feeling a bit miserable about it especially as my 4 year anniversary is coming up in less than a month.
I can't believe it's nearly 4 years, especially as I thought it would all be over by now. And you know what, I don't care about Christmas presents and Christmas cards etc etc etc If I could have one present for the rest of my life (well maybe not the rest of my life, maybe the next couple of years....) it would be for my check up on the 4th January to show that the Leukaemic rate is 0.00%, my platelets are 140 and I can start my 2 year count down to coming off the chemo. I've had enough. Sorry for the rather maudlin self indulgent rant, especially as I like this to be up beat and positive, sometimes times you just have to say it as it is, and I would like to have my life back completely as mine.
Can't really think if anything else. Got 68% in my maths coursework which I was amazed by! I don't think I've ever had that high a score in maths in my life!! I also got 100% in a physics thing, but all the answers were on google - we were allowed to use it, I wasn't cheating, so at least all my hours procrastinating on google has paid off and I'm good at finding out info!!
Right, think I should bugger off now as I should do some more of my final piece of Physics coursework before I start Biology revision, woop woop!!
Lots of love, smiles, laughter and healing light for those who need a bit of it over Christmas,
XXX
Tuesday 21 December 2010
Thursday 2 December 2010
Pictures
So I was going to do a massive blog about my last check up and all things since (because I have a Chemistry exam on Monday...eek and am procrastinating rather than revising!!!!!) and have just seen that I've already done it....arse.
But I can mention some new stuff:
1) Have had all my hair cut off....no jokes, it's like a boys but with a long fringe.
2) I feautre on the Coffee Republic website, hence being famous.
I don't know why it is sideways...it won't let me rotate it..... If you want to have a better look, here is the link:
http://www.coffeerepublic.
3) I went up to the jimmyteens.tv studio to take part in a live debate last week about fertility, have a look:
http://www.jimmyteens.tv/2010/11/25/the-debate-fertility/
4) Ummm, shit, have forgotten ther next one, aghhh, ummmm, shit....ummm...... I have remembered!! My first video blog has been watched over 200 times!! I can't believe it!!! So a massive thank you to everyone who has watched it. And if you haven't, go and have a look. www.jimmyteens.tv and search katie ruane.
5) For those of you who live in Yorkshire, I believe that there are pics of me in the Yorksire Building Society branches. Please can someone go and have a look and let me know. Also take a pic and send it to me. Thank you!
6) London has snow!!!!!!!! Woop woop!!! And I'm very upset about all the people I know in Yorshire who have LOADS and are moaning about it. Embrace it, love it and send it down here!!!
Opposite my flat...ahhh, isn't is pretty??!!
7) Some very sad news, I am officially too old for the Teenage Cancer Trust as I am now 26, but shhhhhh, don't tell them!!!!
8) Right, should probably go and do some Chemistry revision so I don't fail as that would be a serious bugger.
9) My iPhone is playing up and don't think I can last 15-28 days with a loan phone that has no internet/email/facebook/apps etc. That is a very depressing thought....
10) Topman has released AMAZING snoods, bobble hats and scats (a hat and scarf combined) and they are only £16 and a fiver goes to TCT, so if you need presents for people, GO BUY THEM!!! And ignore that fact that they are sold in Topman, I wear mine with pride and contrary to popular opinion, I am not a man!!! And here's the link so you can have a look at them:
http://www.teenagecancertrust.org/get-involved/as-a-company/our-partners/topman/
Lots of love, laughter and smiles AND SNOW,
XXX
But I can mention some new stuff:
1) Have had all my hair cut off....no jokes, it's like a boys but with a long fringe.
2) I feautre on the Coffee Republic website, hence being famous.
http://www.coffeerepublic.
3) I went up to the jimmyteens.tv studio to take part in a live debate last week about fertility, have a look:
http://www.jimmyteens.tv/2010/11/25/the-debate-fertility/
4) Ummm, shit, have forgotten ther next one, aghhh, ummmm, shit....ummm...... I have remembered!! My first video blog has been watched over 200 times!! I can't believe it!!! So a massive thank you to everyone who has watched it. And if you haven't, go and have a look. www.jimmyteens.tv and search katie ruane.
5) For those of you who live in Yorkshire, I believe that there are pics of me in the Yorksire Building Society branches. Please can someone go and have a look and let me know. Also take a pic and send it to me. Thank you!
6) London has snow!!!!!!!! Woop woop!!! And I'm very upset about all the people I know in Yorshire who have LOADS and are moaning about it. Embrace it, love it and send it down here!!!
7) Some very sad news, I am officially too old for the Teenage Cancer Trust as I am now 26, but shhhhhh, don't tell them!!!!
8) Right, should probably go and do some Chemistry revision so I don't fail as that would be a serious bugger.
9) My iPhone is playing up and don't think I can last 15-28 days with a loan phone that has no internet/email/facebook/apps etc. That is a very depressing thought....
10) Topman has released AMAZING snoods, bobble hats and scats (a hat and scarf combined) and they are only £16 and a fiver goes to TCT, so if you need presents for people, GO BUY THEM!!! And ignore that fact that they are sold in Topman, I wear mine with pride and contrary to popular opinion, I am not a man!!! And here's the link so you can have a look at them:
http://www.teenagecancertrust.org/get-involved/as-a-company/our-partners/topman/
Lots of love, laughter and smiles AND SNOW,
XXX
Friday 12 November 2010
I forgot....
New video is up on jimmyteen.tv:
http://www.jimmyteens.tv/2010/11/10/introducing-the-ruanes-part-2/
Enjoy!!
XXX
http://www.jimmyteens.tv/2010/11/10/introducing-the-ruanes-part-2/
Enjoy!!
XXX
And the great is outweighed by the silly
So I had my check up yesterday and was told some brilliant news - my platelets are up to 160 from 90. The reason why I have been slightly less than truly excited about it is because I have been off the chemo for 2/3 weeks because of a prescription getting lost on route to the drug delivery company. So although it's great, it will be truly great if they are still up at my next check up. If they are, it means they are stronger and that the chemo is no longer killing them off.
Another reason why I was not my usual jubilant self when being told this is because when I got on the scales I was HORRIFIED to discover that rather than them being less than last time (over the past 3 check ups my weight has steadily crept up and I do not like this, so have started running again and have been more aware of what I've been eating) the scales showed I had put on ANOTHER 2 kilos. This promptly put me in a shite mood and I stayed in that mood until I got home at about 5 o'clock and could cry about it.
I'm sure most if not all of you are thinking, how ridiculous, why get upset about this when the other news was so good. The reason is because I have battled with my weight for many years, and when I was little, for those of you who didn't know me then, I was rather rotund to say the least and it's only really been since the cancer diagnosis that my weight has been what it should be. So to discover it had gone up even more was not what I was expecting and upset me a lot.
What is nice to know that both parents were just as shocked, where as in the past when I'd weighed more than expected my mother in her ever tactful way would have said something along the lines of 'you are gorgeous just the way you are' and my father would say something along the lines of 'yes, you do need to do some more exercise', they were both amazed when I told them. So that helped a bit. I'm just telling myself that it's the muscle that I've built up with the running....
Anyways, enough on my weight, what else can I mention? Not much I don't think as I did rather a long blog recently to which some delightful young gentleman commented that I 'didn't half go on' (thanks James) on my facebook post, so bearing that in mind, shall bugger off and go and do some chemistry as I'm at home for a 'guided independent study week' so should use it.
Lots of love, laughter and smiles,
XXX
Another reason why I was not my usual jubilant self when being told this is because when I got on the scales I was HORRIFIED to discover that rather than them being less than last time (over the past 3 check ups my weight has steadily crept up and I do not like this, so have started running again and have been more aware of what I've been eating) the scales showed I had put on ANOTHER 2 kilos. This promptly put me in a shite mood and I stayed in that mood until I got home at about 5 o'clock and could cry about it.
I'm sure most if not all of you are thinking, how ridiculous, why get upset about this when the other news was so good. The reason is because I have battled with my weight for many years, and when I was little, for those of you who didn't know me then, I was rather rotund to say the least and it's only really been since the cancer diagnosis that my weight has been what it should be. So to discover it had gone up even more was not what I was expecting and upset me a lot.
What is nice to know that both parents were just as shocked, where as in the past when I'd weighed more than expected my mother in her ever tactful way would have said something along the lines of 'you are gorgeous just the way you are' and my father would say something along the lines of 'yes, you do need to do some more exercise', they were both amazed when I told them. So that helped a bit. I'm just telling myself that it's the muscle that I've built up with the running....
Anyways, enough on my weight, what else can I mention? Not much I don't think as I did rather a long blog recently to which some delightful young gentleman commented that I 'didn't half go on' (thanks James) on my facebook post, so bearing that in mind, shall bugger off and go and do some chemistry as I'm at home for a 'guided independent study week' so should use it.
Lots of love, laughter and smiles,
XXX
Sunday 31 October 2010
Ummmm, can't think of a title...any suggestions??
So, ummmm, brain not really working after only 5 hours sleep last night after a seriously random but fun night out in Balham...yes, I went to zone 3 voluntarily! And am pretty knackered at the moment as haven't been sleeping properly lately, am not sure why not. Don't know if it's a full moon or if it's my brain processing everything from uni that is keeping me awake. Hopefully it will stop soon and I will resume to getting enough sleep each night!
On the uni front, all is going well, my head hurts most of the time though. Concentrating is fucking hard work!! Am also having to retrain my thought process about maths and science from when I was at school which was an immediate 'can't do it, don't understand, bored, I just want to flirt with the boys' to 'oh right, that's what it means, that's how it works, I GET IT!!!!!!' Which is massively revolutionary and a huge relief at the same time. Just need to do more work outside of the classroom. Am meant to be doing that now as my lovely flatty Liza has her boyfriend Ed over and they are both doing work as Liza is lesson planning for the horrors she teaches....have I mentioned the school she works in?? I won't mention the name, but to sum it up, they have police, potentially riot police I can't remember, on the school premises every day just in case!! And Ed works full time and is doing a law conversion (maniac) so I thought I would do some work too. Well googling an idiots guide of how to write and balance formulaic equations for chemistry. If anyone knows a good site, or is able to explain this in one syllable words, please let me know!!! And then I thought that I feel massively hungover, yes I STILL get hangovers even though I don't drink because my hangovers were sleep deprivation, and I still get that so the sober person still suffers...joy and then thought I would blog. Lucky you!
I randomly bumped into a school friend last night who I haven't seen since school and he told me that he reads my blog as when it imports onto Facebook (so Freddie, you are now officially famous for getting a mention here!) and I was reminded that people do actually read this so thought would do a little update. When I first stated this I got comments all the time as everything was still new and I guess quite scary for everyone, but over 3 and a half years down the line I guess everyone has come round to my blaseness (and yes, that is a word) about the situation and the comments have stopped. Do feel free to leave a comment if you want, even if it's entirely random and not connected to anything in the blog, so I know you are still reading this and I'm not being completely self indulgent and just writing (rather wittily, once again, that is a word, and I've just done a spell check and it IS actually a word!) for myself. Although that's not a bad thing either, very therapeutic etc etc
So what's new? Am completely settled in the flat and have only one box left to unpack, and am very happy here with Liza so that's all good. Have also seen a few inmates which was very exciting. Groups seem to be able to go outside for exercise on a Wed afternoon and I've seen them waiting to be let back in. When they saw me they all started waving manically and then realised that I'm female and then all promptly started wolf whistling which made me giggle.
I have had some bad news since I last blogged which is that my Godfather has been diagnosed with a tumour in his oesophagus where his throat and stomach meet. The prognosis is good though, chemo, surgery and then mop up chemo so all will be fine which is obviously a massive relief. In some ways I am grateful to my diagnosis as I don't go into immediate melt down, tears and panic. I am able to compute it a bit and know that whilst is is scary, its manageable. I will be eternally grateful for that. Uh oh, I feel a slightly maudlin mood coming on so shall move onto something else.....
My video blogs, am now up to blog 5 and have a family blog and friends blog up so go and have a gander. www.jimmyteens.tv
I am also AMAZED that my first video blog has been watched something like 146 times, MENTAL!! Also a massive thank you to anyone reading this who has watched them...and comments would be good so I can include, remove etc stuff to new ones as I do them. I'm afraid if you don't like them tough, I'm not going to stop doing them as once again it's a complete self indulgence for me (does that make sense grammatically?? I think probable not and my father will be tearing his hair out, especially when he thinks about the thousands of pounds he spent on my education....) and they make me laugh when I watch them as they go up online.
And I know you are all thinking, shit, she's babbled on for ages without mentioning the Teenage Cancer Trust, what's happening???? But here it is....A couple of weeks ago I was part of a shoot for a campaign that the Yorkshire Building Society is doing to raise money and I believe that photo's of me will be in the brancheson here as there was a hair/make up artist so will obviously have to show off the professional pics. And if for any random reason the photographer Simon Webbe, no not the singer from Blue, ever reads thins...thank you, the pics are amazing !!! And sorry for being a bit rude/cheeky, I DON'T like being called Kate by ANYONE! Although thinking about that, I might not correct the Queen if I were to ever meet her....
So ummm...oh yes, another TCT thing. My darling cousin Octavia is currently hiking in the Himalayas (and I'm fairly sure that's how it spelt....might go and check...) so here's the link to her page on the Teenage Cancer Trust website
http://www.teenagecancertrust.org/get-involved/as-a-fundraiser/fundraisers/octavia-hikes-the-himalayas/
...am a bit jealous of that...I don't have a page dedicated to me, hmmm, might have to phone and moan about that!!! God, I'm such a fucking diva. Calm down Katherine and stop being a twat. I've just thought, is that word a bit strong to be on here? It's a step above fuck isn't it??? It does also happen to be my new favourite word at the moment, am not sure why or where it's come from and as I'm 26 (can't believe it!!) in just over 3 weeks I suppose I'm old enough to put that word on here and apologies to anyone who is offended by it. And Grandma, just because I use it, does NOT mean that you can ok??? (and for those of you who think I'm joking about my Grandma reading this, I'm not. She is a bigger internet geek than I am. She doesn't swear as much as me though).
Is there anything more to say? I don't think so. Check up in a couple of weeks so hopefully even better results than last time. Should probably go back and make sure this makes sense, well as much sense as the massively rambled thoughts of my mind written down can be!
Lots of love, laughter and smiles as ever,
XXX
On the uni front, all is going well, my head hurts most of the time though. Concentrating is fucking hard work!! Am also having to retrain my thought process about maths and science from when I was at school which was an immediate 'can't do it, don't understand, bored, I just want to flirt with the boys' to 'oh right, that's what it means, that's how it works, I GET IT!!!!!!' Which is massively revolutionary and a huge relief at the same time. Just need to do more work outside of the classroom. Am meant to be doing that now as my lovely flatty Liza has her boyfriend Ed over and they are both doing work as Liza is lesson planning for the horrors she teaches....have I mentioned the school she works in?? I won't mention the name, but to sum it up, they have police, potentially riot police I can't remember, on the school premises every day just in case!! And Ed works full time and is doing a law conversion (maniac) so I thought I would do some work too. Well googling an idiots guide of how to write and balance formulaic equations for chemistry. If anyone knows a good site, or is able to explain this in one syllable words, please let me know!!! And then I thought that I feel massively hungover, yes I STILL get hangovers even though I don't drink because my hangovers were sleep deprivation, and I still get that so the sober person still suffers...joy and then thought I would blog. Lucky you!
I randomly bumped into a school friend last night who I haven't seen since school and he told me that he reads my blog as when it imports onto Facebook (so Freddie, you are now officially famous for getting a mention here!) and I was reminded that people do actually read this so thought would do a little update. When I first stated this I got comments all the time as everything was still new and I guess quite scary for everyone, but over 3 and a half years down the line I guess everyone has come round to my blaseness (and yes, that is a word) about the situation and the comments have stopped. Do feel free to leave a comment if you want, even if it's entirely random and not connected to anything in the blog, so I know you are still reading this and I'm not being completely self indulgent and just writing (rather wittily, once again, that is a word, and I've just done a spell check and it IS actually a word!) for myself. Although that's not a bad thing either, very therapeutic etc etc
So what's new? Am completely settled in the flat and have only one box left to unpack, and am very happy here with Liza so that's all good. Have also seen a few inmates which was very exciting. Groups seem to be able to go outside for exercise on a Wed afternoon and I've seen them waiting to be let back in. When they saw me they all started waving manically and then realised that I'm female and then all promptly started wolf whistling which made me giggle.
I have had some bad news since I last blogged which is that my Godfather has been diagnosed with a tumour in his oesophagus where his throat and stomach meet. The prognosis is good though, chemo, surgery and then mop up chemo so all will be fine which is obviously a massive relief. In some ways I am grateful to my diagnosis as I don't go into immediate melt down, tears and panic. I am able to compute it a bit and know that whilst is is scary, its manageable. I will be eternally grateful for that. Uh oh, I feel a slightly maudlin mood coming on so shall move onto something else.....
My video blogs, am now up to blog 5 and have a family blog and friends blog up so go and have a gander. www.jimmyteens.tv
I am also AMAZED that my first video blog has been watched something like 146 times, MENTAL!! Also a massive thank you to anyone reading this who has watched them...and comments would be good so I can include, remove etc stuff to new ones as I do them. I'm afraid if you don't like them tough, I'm not going to stop doing them as once again it's a complete self indulgence for me (does that make sense grammatically?? I think probable not and my father will be tearing his hair out, especially when he thinks about the thousands of pounds he spent on my education....) and they make me laugh when I watch them as they go up online.
And I know you are all thinking, shit, she's babbled on for ages without mentioning the Teenage Cancer Trust, what's happening???? But here it is....A couple of weeks ago I was part of a shoot for a campaign that the Yorkshire Building Society is doing to raise money and I believe that photo's of me will be in the brancheson here as there was a hair/make up artist so will obviously have to show off the professional pics. And if for any random reason the photographer Simon Webbe, no not the singer from Blue, ever reads thins...thank you, the pics are amazing !!! And sorry for being a bit rude/cheeky, I DON'T like being called Kate by ANYONE! Although thinking about that, I might not correct the Queen if I were to ever meet her....
So ummm...oh yes, another TCT thing. My darling cousin Octavia is currently hiking in the Himalayas (and I'm fairly sure that's how it spelt....might go and check...) so here's the link to her page on the Teenage Cancer Trust website
http://www.teenagecancertrust.org/get-involved/as-a-fundraiser/fundraisers/octavia-hikes-the-himalayas/
...am a bit jealous of that...I don't have a page dedicated to me, hmmm, might have to phone and moan about that!!! God, I'm such a fucking diva. Calm down Katherine and stop being a twat. I've just thought, is that word a bit strong to be on here? It's a step above fuck isn't it??? It does also happen to be my new favourite word at the moment, am not sure why or where it's come from and as I'm 26 (can't believe it!!) in just over 3 weeks I suppose I'm old enough to put that word on here and apologies to anyone who is offended by it. And Grandma, just because I use it, does NOT mean that you can ok??? (and for those of you who think I'm joking about my Grandma reading this, I'm not. She is a bigger internet geek than I am. She doesn't swear as much as me though).
Is there anything more to say? I don't think so. Check up in a couple of weeks so hopefully even better results than last time. Should probably go back and make sure this makes sense, well as much sense as the massively rambled thoughts of my mind written down can be!
Lots of love, laughter and smiles as ever,
XXX
Wednesday 22 September 2010
2nd blog us up
If you go to Jimmyteens.tv you will see my second video blog is up.
Hope all is well with everyone.
XxX
Hope all is well with everyone.
XxX
Me and Jack
I just wanted to put on here a photo of me and Jack who so tragically died last week. This is us together outside number 10 when we went to number 11 earlier in the year for TCT.
A smiling superstar
Monday 20 September 2010
And it hits you like a bus
I'm not going to go on for hours, I just wanted to put on here that a friend of my cousins is running the Thames path (crazy, crazy man!) for Teenage Cancer Trust. Never has it been more of a worthwhile thing to do for TCT as I was told this morning that a buddy I met through TCT lost his battle. Had e been diagnosed earlier this may have been avoided. Jack was a superstar, positive and smiling to the end.
Here is the link to Nick's fundraising page. I know every week people are asking for money, so if you can, please give. And I will carry Jack's smile with me forever.
Ok, so am doing this all from my phone and can't fund the link, but go to the Virgin fundraising website and search for Scenick Run, you can donate there.
Much love, laughter and smiles,
XxX
Here is the link to Nick's fundraising page. I know every week people are asking for money, so if you can, please give. And I will carry Jack's smile with me forever.
Ok, so am doing this all from my phone and can't fund the link, but go to the Virgin fundraising website and search for Scenick Run, you can donate there.
Much love, laughter and smiles,
XxX
Saturday 18 September 2010
Mixed Emotions
Well my little bloglets,
It's been a couple of weeks of mixed emotions culminating with a brief episode of sobbing yesterday at Heathrow airport after Milo (little brother for those of you who don't know) flew to Singapore for 3 years with work. Being only 13 months older than Milo we have spent our lives being nearly twins; went to the same school, spent many a year sharing bedrooms and when we were little, if Milo had a nightmare, I would tell him to chose his dreams from a bookcase in his imagination, so he could decide what he dreamt about. And even when at uni he was only an hour and half away down the road in Newcastle, and in London just over the river, so yesterday was a bit emotional for me to say the least. He has been so brilliant to me since my diagnosis - truly the best baby brother, and I would never be able to put it into words, so should probably stop this rather self indulgent dialogue now. Also I'm beginning to upset myself so will move on....
I am now officially a student again, woop! ....have also worked out how much I will owe the government when this degree is over, and this 4 years combined with my previous 4 years is rather a terrifying amount, so will try to forget! Let me just say that if I had the money in one lump sum, it would be a very hefty deposit for a flat in town! I am very excited about the degree, not so excited about the Maths and Physics part of it....I hadn't thought these two subjects were a part of the teaching I must admit.....And I was surprised to discover that only a handful of us have been to uni before, so at least I am better prepared than most and know what to expect. I am also happy to discover that many are mid twenties/early thirties, I had assumed that I would be younger by quite a few years, but am not, that's good! Not that I have anything against older people being at uni or anything....right, move on before I have to go and get a spade to get me out of this hole....
Check up just over a week ago and more good news. Platelets at 90 and Leukaemic rate down to 0.026% so pretty fucking happy with that. On a not so positive note the scales are creeping back up, and there is no element of forgiveness with electronic scales so my running regime starts with no excuses on Monday! Also my PCT (primary care trust) have refused to pay back the £4,000, but as I am going to registering with a new doctors this week in a different borough in London as I am now a Lambeth rather than Wandsworth girl, my consultant has suggested we re apply as it may well be a different PCT in that area. Also TCT are going to get involved and see if they can do anything to help.
On a TCT note, I have been given the DVD of me speaking at the Royal Albert Hall and am very happy to report back that it is not embarrassing at all and am actually rather impressed with my coolness and togetherness considering how nervous I felt! I was also at Canary Wharf last week for a charity day at BGC (Barlcays something a rather) and meet Cilla Black and the Tony (can't remember his surname) who sang Amarillo! I had a really long chat with his wife who is massively into complimentary health.
New flat - love it, am so happy in it and Liza likes it to, thanks fuck! As I was really worried that she wouldn't. Am being driven back tomorrow night with the last of my kitchen stuff and a couple of chairs etc and I believe it will be fully kitted out. I tell you what, Spadsa (Asda to everyone else, I refer to it as Spadsa as it's where special people shop....) it bloody brilliant when needing to buy basics. I got a mop for 2 quid, 16 or 18 glasses for a fiver! Bloody brilliant.
What else,...hmmm, ooh, my first video blog has gone live, so here is the address so you can have a look. I believe that a new one will be put up every week from now on (until they run out of them, which reminds me, I need to post back my most recent ones....). So here is the link:
http://www.jimmyteens.tv/2010/09/18/katie-ruane-blog-1/
And ummm was going to add something else but I went to take something out of the oven and can't remember what it was...bugger.....
As I have completely lost my train of thought shall bugger off! It's also Kevla's birthday (the big 60!!) so should probably go and spend some time with him.....
How funny, was just talking about my speaking at the Royal Albert Hall where I announced my love for Dave Grohl and now The Foo Fighters are being played on the radio...WEIRD!!!! Right, am now really buggering off.
Much love, laughter and smiles as usual,
XXX
p.s. how many have noticed the new layout/colour scheme to my blog?? Also another funny coincidence is that the blue is the blue of TCT! Crazyness....
It's been a couple of weeks of mixed emotions culminating with a brief episode of sobbing yesterday at Heathrow airport after Milo (little brother for those of you who don't know) flew to Singapore for 3 years with work. Being only 13 months older than Milo we have spent our lives being nearly twins; went to the same school, spent many a year sharing bedrooms and when we were little, if Milo had a nightmare, I would tell him to chose his dreams from a bookcase in his imagination, so he could decide what he dreamt about. And even when at uni he was only an hour and half away down the road in Newcastle, and in London just over the river, so yesterday was a bit emotional for me to say the least. He has been so brilliant to me since my diagnosis - truly the best baby brother, and I would never be able to put it into words, so should probably stop this rather self indulgent dialogue now. Also I'm beginning to upset myself so will move on....
I am now officially a student again, woop! ....have also worked out how much I will owe the government when this degree is over, and this 4 years combined with my previous 4 years is rather a terrifying amount, so will try to forget! Let me just say that if I had the money in one lump sum, it would be a very hefty deposit for a flat in town! I am very excited about the degree, not so excited about the Maths and Physics part of it....I hadn't thought these two subjects were a part of the teaching I must admit.....And I was surprised to discover that only a handful of us have been to uni before, so at least I am better prepared than most and know what to expect. I am also happy to discover that many are mid twenties/early thirties, I had assumed that I would be younger by quite a few years, but am not, that's good! Not that I have anything against older people being at uni or anything....right, move on before I have to go and get a spade to get me out of this hole....
Check up just over a week ago and more good news. Platelets at 90 and Leukaemic rate down to 0.026% so pretty fucking happy with that. On a not so positive note the scales are creeping back up, and there is no element of forgiveness with electronic scales so my running regime starts with no excuses on Monday! Also my PCT (primary care trust) have refused to pay back the £4,000, but as I am going to registering with a new doctors this week in a different borough in London as I am now a Lambeth rather than Wandsworth girl, my consultant has suggested we re apply as it may well be a different PCT in that area. Also TCT are going to get involved and see if they can do anything to help.
On a TCT note, I have been given the DVD of me speaking at the Royal Albert Hall and am very happy to report back that it is not embarrassing at all and am actually rather impressed with my coolness and togetherness considering how nervous I felt! I was also at Canary Wharf last week for a charity day at BGC (Barlcays something a rather) and meet Cilla Black and the Tony (can't remember his surname) who sang Amarillo! I had a really long chat with his wife who is massively into complimentary health.
New flat - love it, am so happy in it and Liza likes it to, thanks fuck! As I was really worried that she wouldn't. Am being driven back tomorrow night with the last of my kitchen stuff and a couple of chairs etc and I believe it will be fully kitted out. I tell you what, Spadsa (Asda to everyone else, I refer to it as Spadsa as it's where special people shop....) it bloody brilliant when needing to buy basics. I got a mop for 2 quid, 16 or 18 glasses for a fiver! Bloody brilliant.
What else,...hmmm, ooh, my first video blog has gone live, so here is the address so you can have a look. I believe that a new one will be put up every week from now on (until they run out of them, which reminds me, I need to post back my most recent ones....). So here is the link:
http://www.jimmyteens.tv/2010/09/18/katie-ruane-blog-1/
And ummm was going to add something else but I went to take something out of the oven and can't remember what it was...bugger.....
As I have completely lost my train of thought shall bugger off! It's also Kevla's birthday (the big 60!!) so should probably go and spend some time with him.....
How funny, was just talking about my speaking at the Royal Albert Hall where I announced my love for Dave Grohl and now The Foo Fighters are being played on the radio...WEIRD!!!! Right, am now really buggering off.
Much love, laughter and smiles as usual,
XXX
p.s. how many have noticed the new layout/colour scheme to my blog?? Also another funny coincidence is that the blue is the blue of TCT! Crazyness....
Friday 3 September 2010
A little heads up/promotion
Sooooo, as I've previously mentioned jimmyteens.tv (who are are the video blog people who work alongside Teenage Cancer Trust) are launching live studio stuff on Wednesday 15th September at 6pm where you will see one of my new cancer kid buddies, Peter aka Pierre when on screen hosting or doing something....
Anyways, if you are free and have nothing else to do, have a gander and who knows, you might even see me on there live, rather than highly edited when doing my little video blogs one day!
www.jimmyteens.tv - support them, they think I'm interesting and special in a good way, not in a taking the piss way...at least I thought they were being serious.....
XXX
Anyways, if you are free and have nothing else to do, have a gander and who knows, you might even see me on there live, rather than highly edited when doing my little video blogs one day!
www.jimmyteens.tv - support them, they think I'm interesting and special in a good way, not in a taking the piss way...at least I thought they were being serious.....
XXX
Wednesday 25 August 2010
Found a flat!
Well my lovely bloglets,
I have found a flat, woop!! Tis a MASSIVE relief. It's Victorian so has good sized rooms, isn't too expensive and is in Brixton which is the new place to be...well I think so anyways. I predict that everyone will move there from Clapham as Clapham is getting waaay tooo expensive! Oh and also, the flat is right next to the prison which means that it is really safe, cause lets face it, who is going to be have in an illegal manner right next to a prison where there are guards patrolling etc?? No one!! Well unless they are massively stupid!!
My finding has also come through for my degree..have I mentioned that before? I can't remember? Anyways, I had stupid amounts of grief and hassle trying to get it all okayed. They should have done it from the word go as I am entitled to it as my first degree wasn't an Hons (thank fuck) so I will be furthering my education, so am allowed it....but they didn't get that did they?! As they saw that I had a degree they didn't read what I had put correctly so missed the fact that is isn't an Hons, and then didn't look at my degree certificate that I posted in properly which clearly states that...so had to play the cancer card and send in letters from current and old consulant, from my on LEA to confirm my diagnosis during uni and that it interrupted my studies blah blah blah. I FINALLY spoke to someone at Student Finance with more than half a brain cell who said, 'you are entitled to everything as you don't have an Hons degree and this should have been approved in March when I applied. Good.............. So now I don't have to panic and worry about how I'm going to pay for it as our beloved government are...until I have to pay it back.....
I have also recently received an email to say that my old employer wants to settle out of court, even though if it went to court their case would be solid and win....yeah right!! So that is good news. I should hopefully hear back soon with their response to the figure I put forward, and of course it will be a 'yes we will pay now; response!!
IVF money front, if my consultant hasn't been able to progress by my next appointment which is in a couple of weeks, I shall get TCT involved. Once again, I can't remember if I've mentioned this before or not...I could check, but can't be arsed. Am also on a roll so if I do that I will break my writing flow, which of course would NOT (I'm getting involved with capitol letters today!) be good. So yes, defo shouldn't have paid for IVF, and TCT will back me all the way to the media, so you never know, I could be in the press (again) very shortly. I might think about getting an agent soon...ha ha ha, jokes!
Ummmm, suddenly my hair looks very glossy and seems to be much healthier than normal, so fingers crossed that I get some fucking good results in a couple of weeks! It's time I got them, and getting a bit bored of this cancer malarkey,....
I've been doing some films for jimmyteens.tv and they should be on their website soon, so will put the link on here when they are so you can all have a watch.
Ummm, that's it me thinks, move in date to new flat is the 14th Sept at the moment, hopefully it will be moved forward as have been homeless for nearly a month and don't really fancy sofa hopping for another 3 weeks....although on the flip side it does mean more money in the bank that's not going out on rent.....
Right, time to bugger off. Can't be arsed to re- read this for spelling mistakes and typo's. Hope it's not too bad and this all makes sense! Have been speed typing!
Lots of love, laughter and smiles as always,
XXX
I have found a flat, woop!! Tis a MASSIVE relief. It's Victorian so has good sized rooms, isn't too expensive and is in Brixton which is the new place to be...well I think so anyways. I predict that everyone will move there from Clapham as Clapham is getting waaay tooo expensive! Oh and also, the flat is right next to the prison which means that it is really safe, cause lets face it, who is going to be have in an illegal manner right next to a prison where there are guards patrolling etc?? No one!! Well unless they are massively stupid!!
My finding has also come through for my degree..have I mentioned that before? I can't remember? Anyways, I had stupid amounts of grief and hassle trying to get it all okayed. They should have done it from the word go as I am entitled to it as my first degree wasn't an Hons (thank fuck) so I will be furthering my education, so am allowed it....but they didn't get that did they?! As they saw that I had a degree they didn't read what I had put correctly so missed the fact that is isn't an Hons, and then didn't look at my degree certificate that I posted in properly which clearly states that...so had to play the cancer card and send in letters from current and old consulant, from my on LEA to confirm my diagnosis during uni and that it interrupted my studies blah blah blah. I FINALLY spoke to someone at Student Finance with more than half a brain cell who said, 'you are entitled to everything as you don't have an Hons degree and this should have been approved in March when I applied. Good.............. So now I don't have to panic and worry about how I'm going to pay for it as our beloved government are...until I have to pay it back.....
I have also recently received an email to say that my old employer wants to settle out of court, even though if it went to court their case would be solid and win....yeah right!! So that is good news. I should hopefully hear back soon with their response to the figure I put forward, and of course it will be a 'yes we will pay now; response!!
IVF money front, if my consultant hasn't been able to progress by my next appointment which is in a couple of weeks, I shall get TCT involved. Once again, I can't remember if I've mentioned this before or not...I could check, but can't be arsed. Am also on a roll so if I do that I will break my writing flow, which of course would NOT (I'm getting involved with capitol letters today!) be good. So yes, defo shouldn't have paid for IVF, and TCT will back me all the way to the media, so you never know, I could be in the press (again) very shortly. I might think about getting an agent soon...ha ha ha, jokes!
Ummmm, suddenly my hair looks very glossy and seems to be much healthier than normal, so fingers crossed that I get some fucking good results in a couple of weeks! It's time I got them, and getting a bit bored of this cancer malarkey,....
I've been doing some films for jimmyteens.tv and they should be on their website soon, so will put the link on here when they are so you can all have a watch.
Ummm, that's it me thinks, move in date to new flat is the 14th Sept at the moment, hopefully it will be moved forward as have been homeless for nearly a month and don't really fancy sofa hopping for another 3 weeks....although on the flip side it does mean more money in the bank that's not going out on rent.....
Right, time to bugger off. Can't be arsed to re- read this for spelling mistakes and typo's. Hope it's not too bad and this all makes sense! Have been speed typing!
Lots of love, laughter and smiles as always,
XXX
Sunday 8 August 2010
Really quickly because I'm meant to be peeling pears...
So bloglets,
Really quickly as I'm meant to be peeling pears for some grand pudding the Kevla is in the midst of making, I want to put a link here for you to have a look at:
http://www.jimmyteens.tv/2010/08/08/getting-to-know-you/
It's the first of a series of videos from The Way Forward weekend that I went to a few weeks ago and blogged about. Obviously it's amazing as I'm in in!! Also it's brilliant because two new buddies I met through the weekend, Peter Wilkinson and his beautiful little wife, Debs are behind the editing etc of the video. So a round of applause for them please!
Ok, going a little bit mental now, and I fear I'm about to get a bollocking for not doing the pears....
Much love, laughter and smiles as ever
XXX
Really quickly as I'm meant to be peeling pears for some grand pudding the Kevla is in the midst of making, I want to put a link here for you to have a look at:
http://www.jimmyteens.tv/2010/08/08/getting-to-know-you/
It's the first of a series of videos from The Way Forward weekend that I went to a few weeks ago and blogged about. Obviously it's amazing as I'm in in!! Also it's brilliant because two new buddies I met through the weekend, Peter Wilkinson and his beautiful little wife, Debs are behind the editing etc of the video. So a round of applause for them please!
Ok, going a little bit mental now, and I fear I'm about to get a bollocking for not doing the pears....
Much love, laughter and smiles as ever
XXX
Tuesday 3 August 2010
I forgot something
So I spoke at the private view of an exhibition in Camden, of course for TCT and I think it went quite well. And am adding to my 'famous people I've met' list which is always a fun game! So if anyone is near or in Camden or wants to go to an AMAZING photography exhibition, go to Proud Gallery and see the 6 Shooters exhibition. And if anyone wants to buy me a Dave Ghrol picture, please do! I tried my best to either steal it, or get someone to buy it for me on the night, and failed miserably!!
Right, I really do think that's it....
XXX
Right, I really do think that's it....
XXX
A little post from the rentals
Well my little bloglets,
I am currently sitting outside in the rentals garden doing this as I have the week off...bliss! Quite a lot has happened in the past couple of months. Am quite tempted to do my list again rather than babble on for hours because I am in the middle of doing video blogs for a company associated with Teenage Cancer Trust called JimmyTeens and rather than explaining it, here's the website so go and have a look yourselves!
www.jimmyteens.tv
And I need to carry on with them so I don't end up repeating myself all the time as I feel I potentially do on here!
So here comes the list:
1. back to 8 week check ups woop woop a platelets up to 94 woop woop!
2. Had an email from the Employment Tribunal mediator woman type thing asking me what figure I would like to suggest as my ex employer wants to settle out of court (even though they have a strong case if it goes to court....yeah right!) so am waiting for my solicitor to advise me on what figure to suggest.
3. I think there is a light at the end of the pavalova with Student Finance and trying to get finance for my degree that starts in Sept. I had a phone call yesterday saying that as I don't have an honours degree then I should get funding and I didn't need to supply medical evidence to support this. I tell you what, these places are full of monkeys who are literally 'computer says no' types with the very rare person who is able to think for themselves. Thank god these people realise that I am not trying to abuse the system and am only trying to get what I am entitled to!!
4. My beloved Teenage Cancer Trust are going to kick up a fuss in the media if I don't get my IVF money back as there is no way in hell I should have paid for it. Fucking cheeky IVF consultant, grrrr....anyways, I'm seeing what my lovely consultant can do by my next check up - I think the 9th Sept - and if she hasn't got anywhere, hello media! (again!).
5. Went to a really brilliant weekend with TCT in Colchester a couple of weekends ago. It was a focus group about support post treatment etc and funnily enough a lot of the topics that were raised by both myself and the others are things covered by the course I have done, the Healing Journey, so have told TCT about it, and maybe they will take it on. I'm hoping to become a facilitator of the Healing Journey...am just waiting to hear if doing the Healing Journey qualifies you, or if you still have to be a trained councillor.
6. I'm going to be trained in EFT soon (by my Mummy) so that will be brilliant, so can continue to help myself both on my own as a trained person, with Mummy (as I do at the moment) and can help others and make some extra money. If any one else is interested in finding out more about EFT and potentially training in it, let me know.
7. Have moved out of my flat, as I'm moving in with a uni friend in Sept and was potentially going to be away for August (which fell through, obviously or I'd be doing this somewhere hot and sunny and exotic, not in a Suffolk garden!) so am flat hunting. I've decided Brixton is the way forward. Saw an AMAZING flat last weekend, but unfortunately was waaay over budget...nevermind, I'm sure something else even better will pop up.
8. Ummm.............Brain gone blank......
9. I discovered at the recent TCT weekend that I'm amazing at Rock Climbing and I suck beyond belief at Archery!
10. Right, nice even number so shall bugger off,
Lots of love, laughter and smiles,
XXX
I am currently sitting outside in the rentals garden doing this as I have the week off...bliss! Quite a lot has happened in the past couple of months. Am quite tempted to do my list again rather than babble on for hours because I am in the middle of doing video blogs for a company associated with Teenage Cancer Trust called JimmyTeens and rather than explaining it, here's the website so go and have a look yourselves!
www.jimmyteens.tv
And I need to carry on with them so I don't end up repeating myself all the time as I feel I potentially do on here!
So here comes the list:
1. back to 8 week check ups woop woop a platelets up to 94 woop woop!
2. Had an email from the Employment Tribunal mediator woman type thing asking me what figure I would like to suggest as my ex employer wants to settle out of court (even though they have a strong case if it goes to court....yeah right!) so am waiting for my solicitor to advise me on what figure to suggest.
3. I think there is a light at the end of the pavalova with Student Finance and trying to get finance for my degree that starts in Sept. I had a phone call yesterday saying that as I don't have an honours degree then I should get funding and I didn't need to supply medical evidence to support this. I tell you what, these places are full of monkeys who are literally 'computer says no' types with the very rare person who is able to think for themselves. Thank god these people realise that I am not trying to abuse the system and am only trying to get what I am entitled to!!
4. My beloved Teenage Cancer Trust are going to kick up a fuss in the media if I don't get my IVF money back as there is no way in hell I should have paid for it. Fucking cheeky IVF consultant, grrrr....anyways, I'm seeing what my lovely consultant can do by my next check up - I think the 9th Sept - and if she hasn't got anywhere, hello media! (again!).
5. Went to a really brilliant weekend with TCT in Colchester a couple of weekends ago. It was a focus group about support post treatment etc and funnily enough a lot of the topics that were raised by both myself and the others are things covered by the course I have done, the Healing Journey, so have told TCT about it, and maybe they will take it on. I'm hoping to become a facilitator of the Healing Journey...am just waiting to hear if doing the Healing Journey qualifies you, or if you still have to be a trained councillor.
6. I'm going to be trained in EFT soon (by my Mummy) so that will be brilliant, so can continue to help myself both on my own as a trained person, with Mummy (as I do at the moment) and can help others and make some extra money. If any one else is interested in finding out more about EFT and potentially training in it, let me know.
7. Have moved out of my flat, as I'm moving in with a uni friend in Sept and was potentially going to be away for August (which fell through, obviously or I'd be doing this somewhere hot and sunny and exotic, not in a Suffolk garden!) so am flat hunting. I've decided Brixton is the way forward. Saw an AMAZING flat last weekend, but unfortunately was waaay over budget...nevermind, I'm sure something else even better will pop up.
8. Ummm.............Brain gone blank......
9. I discovered at the recent TCT weekend that I'm amazing at Rock Climbing and I suck beyond belief at Archery!
10. Right, nice even number so shall bugger off,
Lots of love, laughter and smiles,
XXX
Monday 7 June 2010
Platelets and Roger Daltrey
Well my lovely ones,
The wonderful hot weather we were enjoying seems to have buggered off....according to one of my consultants other patients the weather was meant to be hot hot hot until Sept with the odd bit of rain according to her weather expert husband......hmmmmm.........
So check up last week, platelets up a smidge to 75 and nowt else to report on that front. All it well, just moving slowly slowly!
On a much more upbeat note, I am once again going to be in the press, woop woop!! Tomorrow, I believe in the Sun and the Express, it won't just be about me though, I think it will just be about the charter (please see link below), but with pics of me and the other Cancer Kids at the launch. And of course it's all down to my beloved Teenage Cancer Trust and something I was filmed for. I'll put the link in so you can all have a look. It's for a cancer charter for young people and is the first of it's kind. The webiste is:
www.cancercharter.org
PLEASE PLEASE PLEASE PLEASE PLEASE go and sign it! Thanks! And if you want to watch the film with me, it's on the home page...and good, the frame it's paused on is me....And here's a pic of us Cancer Kids and Roger Daltrey.....
Until next time, (in approx 6 weeks when I have my next check up....)
Lots of Love, Laughter and Smiles,
Me XXX
The wonderful hot weather we were enjoying seems to have buggered off....according to one of my consultants other patients the weather was meant to be hot hot hot until Sept with the odd bit of rain according to her weather expert husband......hmmmmm.........
So check up last week, platelets up a smidge to 75 and nowt else to report on that front. All it well, just moving slowly slowly!
On a much more upbeat note, I am once again going to be in the press, woop woop!! Tomorrow, I believe in the Sun and the Express, it won't just be about me though, I think it will just be about the charter (please see link below), but with pics of me and the other Cancer Kids at the launch. And of course it's all down to my beloved Teenage Cancer Trust and something I was filmed for. I'll put the link in so you can all have a look. It's for a cancer charter for young people and is the first of it's kind. The webiste is:
www.cancercharter.org
PLEASE PLEASE PLEASE PLEASE PLEASE go and sign it! Thanks! And if you want to watch the film with me, it's on the home page...and good, the frame it's paused on is me....And here's a pic of us Cancer Kids and Roger Daltrey.....
Lots of Love, Laughter and Smiles,
Me XXX
Tuesday 18 May 2010
Pesky Platelets
Well, the platelets are low again 70 this time around, and my check ups are back to 4 weeks. Not much else to report. Longer post soon.
Lots of love, laughter and smiles,
XXX
Lots of love, laughter and smiles,
XXX
Tuesday 13 April 2010
VERY VERY VERY VERY EXCITING NEWS!!!!!!!!!!!!!!!!
Well little bloglets,
Aren't you just the lucky ones?!? Two posts in under 10 days (I think...).
Well this one will be short but oh so sweet!
MY LEUKAEMIC RATE IS DOWN TO 0.02% !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
The light is at the end of the cancer tunnel. The only reason why I can think of this happening is that I am no longer stupidly stressed and exhausted working for my old boss. Thank fuck I left!
So all I need now is platelets to be normal, shall find that out next Thursday, and I'm sure they will be, and for the rate to drop to 0.00% and I can start my 2 year count down to coming off the chemo. The day is nearly here!!
To celebrate I'm going to go and read a John Grisham book in the sunshine.
Woop fucking woop!
Lots of love, massive smiles and laughter,
XXX
Aren't you just the lucky ones?!? Two posts in under 10 days (I think...).
Well this one will be short but oh so sweet!
MY LEUKAEMIC RATE IS DOWN TO 0.02% !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
The light is at the end of the cancer tunnel. The only reason why I can think of this happening is that I am no longer stupidly stressed and exhausted working for my old boss. Thank fuck I left!
So all I need now is platelets to be normal, shall find that out next Thursday, and I'm sure they will be, and for the rate to drop to 0.00% and I can start my 2 year count down to coming off the chemo. The day is nearly here!!
To celebrate I'm going to go and read a John Grisham book in the sunshine.
Woop fucking woop!
Lots of love, massive smiles and laughter,
XXX
Wednesday 7 April 2010
So much to say
Well my little bloglets,
Where so I begin?? So much has happened recently. Maybe I'll just write a list and add a comment or two. Let me know if you like this new style, to the point, rather than my usual ramblings. That is assuming that people still read this!!
1) I have a job, thank god! Being a PA for a women who does some acting and interior design and has a house in Kenya (am going to be doing a website for it. It is on other websites, so if you want to have a look google Dhow House. It's on Lamu, Kenya). so if any one wants a lush holiday away, let me know and I'll see if I can get you mates rates!
2) I spoke on stage at the Royal Albert Hall in front of 5,000 people twice for Teenage Cancer Trust at their recent gigs raising money. Not scary amazingly enough!
3) I met Roger Daltry - he is tiny!
4) I met Dave Grohl!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! In fact, this should be number one! I also might have to put the pic of me and him on this! I still can't believe it happened, and no I was not cool, calm and collected. I was a flirting wreck! I also told him I loved him....dear god. I turned into once of those start struck people I HATE. All very embarrassing. He laughed at me a lot and said that I was crazy.......
5) I spoke in front of 400 other cancer kids (much more scary than at the Royal Albert Hall) at the Teenage Cancer Trust conference, Find Your Sense of Tumour (bloody fun weekend) about an ad campaign thought up by a Creative Agency called Brothers and Sisters (who are awesome, well the guys that work there who I know are anyway). that I have been heavily involved with called the Big Name Drop. Check it out at www.facebook.com/bignamedrop (an example of the Big Name Drop is in the picture. Can you spot it?)
6). Ummmm....................I'm sure there is more, but I can't remember.............
7) Check up in a couple of weeks, fingers crossed for much better results!
8) I remember! I'm going back to Uni in Sept. I'm going to the University of Westminster to become a Naturopath (I'm embracing the inner hippy). It's another 4 years (woop woop, bring on the second student loan and a grand total of c.£40,000 debt! Yay! I'm so excited about it!!) and I finally feel like I have a career direction, and after my second year I'll be qualified in massages, so I can go on the Teenage Cancer Trust wards and give them to the patients.
9) Really think that's it but want to get it up to 10.
10) Hmmmmmm...........................................................
Lots of love, laughter and smiles,
XXX
Thursday 4 March 2010
Just a quickie
Well I had my check up last week, and unfortunately it was not the news I was after. Platelets down to 100 (previously normal at 144) and Leukaemic rate up a smidge to 0.07%. I know that these are only little backward steps that I'm sure are due to the stress of leaving my job etc etc etc, but it was still a bit crappy.
Am still not working, but have a job, just need to find out about the salary which is exciting, and I have submitted my UCAS application to go back to uni in September - The University of Westminster, am not leaving London! To do a foundation year in Complimentary Therapies and then to do three years becoming a Naturopath, which will be awesome! I can then become self employed, woop woop!!! The ultimate dream and help others and give hope when then think it's all over and can also, fingers crossed, work on the Teenage Cancer Trust wards. I can't remember what I put in my last post, so apologies if I'm repeating myself....I applied for a PA role there which I didn't get, but in a way it's a good thing, because I really want to be working for them/seriously involved, and unfortunately I'm nearly too old to do things for them in the capacity that I do at the moment. Really at 25 I'm over the hill so to speak, but 26 will definitely be pushing the boundaries!! So with my therapies I can still help and be involved and feel better about what I'm doing in regards to helping the cancer kids than being in the office.
What else, hmmm, don't really know, haven't been up to much recently due to a lack of funds, but that is another story which I'm not sure I should publish on line...but hopefully that will all be sorted out very soon! I have a slight lurgy at the moment which I am fending off by watching lots of films and tv programmes....basically what I've been doing for the past few weeks, but as I'm not 100% don't feel like I should be doing something else!!
Oh, I know what I was going to say...HELLO SUNSHINE!!!!! It's so nice to see the sun again! I even sat outside in it a couple of days ago, admittedly wearing quite a few layers, but even so, to feel the warmth of it gave me hope that spring is on the way and winter is finally fucking off!!! And then yesterday is was bloody freezing again!!! I have given up that this country is ever going to be warm again!!
Well I can feel a weather rant coming on, so am going to get back to my busy schedule of watching films. I hope you all have your fingers and toes crossed about my uni application and that I will get in!!
Lots of love, laughter and smiles,
XXX
Am still not working, but have a job, just need to find out about the salary which is exciting, and I have submitted my UCAS application to go back to uni in September - The University of Westminster, am not leaving London! To do a foundation year in Complimentary Therapies and then to do three years becoming a Naturopath, which will be awesome! I can then become self employed, woop woop!!! The ultimate dream and help others and give hope when then think it's all over and can also, fingers crossed, work on the Teenage Cancer Trust wards. I can't remember what I put in my last post, so apologies if I'm repeating myself....I applied for a PA role there which I didn't get, but in a way it's a good thing, because I really want to be working for them/seriously involved, and unfortunately I'm nearly too old to do things for them in the capacity that I do at the moment. Really at 25 I'm over the hill so to speak, but 26 will definitely be pushing the boundaries!! So with my therapies I can still help and be involved and feel better about what I'm doing in regards to helping the cancer kids than being in the office.
What else, hmmm, don't really know, haven't been up to much recently due to a lack of funds, but that is another story which I'm not sure I should publish on line...but hopefully that will all be sorted out very soon! I have a slight lurgy at the moment which I am fending off by watching lots of films and tv programmes....basically what I've been doing for the past few weeks, but as I'm not 100% don't feel like I should be doing something else!!
Oh, I know what I was going to say...HELLO SUNSHINE!!!!! It's so nice to see the sun again! I even sat outside in it a couple of days ago, admittedly wearing quite a few layers, but even so, to feel the warmth of it gave me hope that spring is on the way and winter is finally fucking off!!! And then yesterday is was bloody freezing again!!! I have given up that this country is ever going to be warm again!!
Well I can feel a weather rant coming on, so am going to get back to my busy schedule of watching films. I hope you all have your fingers and toes crossed about my uni application and that I will get in!!
Lots of love, laughter and smiles,
XXX
Tuesday 16 February 2010
I'M BACK
Well all my lovely little bloglets,
I know I have neglected you for many a month, and shall elaborate on this little post very soon, like towards the end of the week type thing.
I now have time to do this as I quit my job, woop!! The main reasons, I'm not fashion and don't really care about it, the commute was too long, the hours rubbish and the pay non existant!
I'm watching the Brits as I do this, and WHAT is Lady Gaga wearing?!?!?!?!?!?!?!? She is so weird!!
Anyways, so have a couple of ideas about the future, one is to work for the Teenage Cancer Trust if I get the job I applied for, if not, then I'm going back to uni if I get accepted into a Complimentary Therapy degree which I think would be pretty bloody good!!
Ooh, also, going back quite a few months, I completed the Great North Run in 2 hours 14 mins, was hoping to do it in 2 hours and would have done, but there were so many people getting in the way!! I am going to do the London Marathon 2012 for TCT, but will obviously leave the sposoring for a while yet!
I have a check up in a couple of weeks. All is going ok. Two check ups ago, my platelets were normal for the first time since Aug 2007 when I wasn't on any chemo which was pretty fucking amazing! Last check up, my leukaemic rate had gone up slightly, I think to 0.063% which was a bit upsetting, I hope that in a couple of weeks my platelets are still normal and the leukaemic rate has gone down.
Before this starts to turn into a short story length of blog, I'm going to go.
You shall be pleased to hear that I have made a promise to do this more often.
Lots of love, light and laugher,
XxX
I know I have neglected you for many a month, and shall elaborate on this little post very soon, like towards the end of the week type thing.
I now have time to do this as I quit my job, woop!! The main reasons, I'm not fashion and don't really care about it, the commute was too long, the hours rubbish and the pay non existant!
I'm watching the Brits as I do this, and WHAT is Lady Gaga wearing?!?!?!?!?!?!?!? She is so weird!!
Anyways, so have a couple of ideas about the future, one is to work for the Teenage Cancer Trust if I get the job I applied for, if not, then I'm going back to uni if I get accepted into a Complimentary Therapy degree which I think would be pretty bloody good!!
Ooh, also, going back quite a few months, I completed the Great North Run in 2 hours 14 mins, was hoping to do it in 2 hours and would have done, but there were so many people getting in the way!! I am going to do the London Marathon 2012 for TCT, but will obviously leave the sposoring for a while yet!
I have a check up in a couple of weeks. All is going ok. Two check ups ago, my platelets were normal for the first time since Aug 2007 when I wasn't on any chemo which was pretty fucking amazing! Last check up, my leukaemic rate had gone up slightly, I think to 0.063% which was a bit upsetting, I hope that in a couple of weeks my platelets are still normal and the leukaemic rate has gone down.
Before this starts to turn into a short story length of blog, I'm going to go.
You shall be pleased to hear that I have made a promise to do this more often.
Lots of love, light and laugher,
XxX
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