Well my lovely Bloglets,
In the past 7 and a bit years I have only been in hospital
as the patient, but not over the last 10 days.
I came home for a few days of chill out before living in the library for
my ‘Easter Holiday’ because of dissertation and an essay due the first Monday back. As always, exhausted, and needed this time to
sleep and re-charge so the rest of my ‘holiday’ was productive. I arrived home on the Monday via the wake of a
family member that I had never met which was rather strange to say the least.
Tuesday morning I got up and as expected the rentals were
not there – Kev aka Daddy, had a routine op booked at Colchester hospital to
remove a cyst at the back of the throat and to have part of his uvula removed
as it was elongated and he has sleep apnoea.
My Ma aka Mummy was in London for appointments and was going to pick him
up on her way home. I was pottering and making tea when the phone rang at about
11, a man asked if I was my Ma - it was the surgeon who had operated on
Kev. He explained that due to swelling
as the cyst was larger than expected and worries that the windpipe would be
blocked, he had been intubated, and was on a ventilator in ICU. Shock, is, I don’t quite think the word to
explain how I felt. This was also
reminiscent of another phone call I had received over 7 years ago with my diagnosis,
and I’m sure I was suddenly thrown back to that evening in the flat I lived in,
in Edinburgh.
I’m not going to detail everything that happened over the
following week sitting in both ICU and then on a normal ward whilst Kev
recovered. I’m not going to go into what
it’s like trying to convince someone who has been awake on high alert for 3
days due to not sleeping for 2 nights once out of sedation with severe paranoia and hallucinations
because of the sedation drugs and hearing everything whilst sedated and trauma, that they are ok.
There were some very funny moments but the majority were, well not
concerning, but a bit fucking weird. And
that’s not my story to tell. I think the
thing that was the hardest to get my head around was walking into ICU and
seeing my Daddy lying in a bed with a tube down his throat and tape around his
mouth holding it in place and a ventilator breathing for him that he was medically healthy and fit. All the time spent on ICU and a normal ward
was due to swelling from the surgery – the body doing what it should do – alongside a bit of a
throat and chest infection and the delerium.
I’m not going to lie, I did nearly hit the floor the first
time I walked into ICU and saw him lying there, but luckily, I know the signs
from my millions of check-ups how I feel when my body is about to
collapse. Note to self, eat food before
going to visit someone in ICU.
I am currently sitting next to him on the sofa and he keeps
on interrupting me with what he wants me to make him for supper and he was ‘back
seat driving’ when I was cooking earlier.
I think he was slightly surprised that the banana bread/cake thing I
made was actually good….wanker.
Anyways, I am eternally grateful for all my hospital shit
and that I understand how they work and am used to sitting around for them for
hours. I am also eternally grateful for
the medical knowledge I have learnt through my degree which enabled me to understand
and explain to my parents, especially Kev during his delirium what was happening
by a person he trusted. And also,
without my diagnosis I may not have met my wonderful friend Kate who is a nurse
and was able to speak to my mother and explain things when some information was
given to her that was worrying. I would also like to say that I was blown away by the
nursing staff at Colchester ICU - they were amazing.
I haven’t really written what I thought I was going to. I have stress rash all over my hands which I
think shows how truly stressful and worrying the last 10 days has been. Shock as well. All my shit being brought up. The worry of seeing him lying there in the
bed, of him being in that state, which is common after sedation where nothing
was as it is, and the fear and the paranoia.
The shock and the trauma this has been for him and for Mummy. My in-built ‘rescuer’ driver kicking in, in
overdrive and needing to look after everyone often to the detriment of my own
self. I left for 24 hours to go back to
London to get reading materials I needed and Kev was convinced that nurses had killed me. That time away and the worry I felt was far
worse than being with him in the hospital.
I quite like hospitals, I feel at home in them. The only downside was the fucking awful
coffee. I am finally beginning to feel
not so knackered and am also a week behind on my work. But fuck it. As always I will get it
done. As long as I pass, my marks, to a
degree are irrelevant.
Back to the hospital - being a family member was far more
stressful and worrying than being a patient.
As a patient I know how I am, I know I am fine, I know I will be
ok. Seeing my Daddy in that bed and then
so affected by the drugs was a heart wrenching thing to experience. I knew it was only temporary but not knowing
when it would be over… waiting.
Something I have been doing for many years, but when it was about
someone else, it was so different.
I have a check up on Monday, a brief phone call with my
consultant yesterday and the chemo change is not going to be straightforward,
but more next week.
The last 10 days have been a bit surreal, I have no idea how
is must feel for my father and how it does as things filter back into his memory
as I help to piece the bits together. I
do know that I am so relieved I was at home when all this happened; I could not
have stayed in London and not known and wondered. And I now know, just a little bit, about how
friends and family must have felt when I was diagnosed and in hospital for that
first week.
He is home and healthy and that is all that matters.
I dedicate this to all the nurses out there who might one
day read this, thank you.
With love, laughter and hope,
XXX
Hi - I saw your blog via Twitter and thought you might be interested in a service we offer. Our Critical Care Follow-up Sister organises drop-in sessions for anyone affected by a stay in Intensive or Critical Care, whether as a patient, relative or friend.
ReplyDeleteIt's a joint venture with former patients, who have also helped develop this ICUsteps Colchester website: http://www.icusteps.org/support/colchester
More details here: http://www.colchesterhospital.nhs.uk/critical_care.shtml