Dear All,
Well what to say?? As you have seen from my little post on Thursday I have had a check up. I was quite surprised at how my white cell count had risen quite so much in the space of 3 weeks to a month. I suppose it shows that the Gelvec was working although it made my life miserable and rather hellish. For those of you who haven't seen my little post from the other day, my white count is up from 10 at the Hammersmith check-up to 59. Due to this and that my platelet count has only dropped from 700 to 617, my dosage of hydroxycarbamide (it just kills off cells, was on it when I was in the hospital and the first couple of weeks I was out) has been put up from one mg to one and a half, or from two pills to three a day...I'm nay bothered on these drugs as they don't affect how I feel.
On a slightly rantish note, I'm not a big fan of my Edinburgh consultant as she has not written what would be helpful on my disabliity living allowence form, grrr grrr grrr which means they'll prob say no, and then I will have to appeal etc etc which is a REAL arse as I'm not working over the summer for obvious reasons and was hoping that I would be getting this by then, and it would be my income...stupid bloody medics...and she was the one who was like Glevec is soooooooooooo amazing, you'll lead a normal life and it won't affect you and it's amazing and wonderful and brilliant etc etc etc big fat bollocks it was!!!! Anyways.....so if any of you want to contribute to the Kat/Katie/Katherine (however you know me!!!) is seriously poor and won't be able to do anything over the summer due to having no money charity........
On the plus side I won't be on any chemo til at least the first week of June, WOO which means 2 more pain free fun weeks!!! On that note, you shall be pleased to hear that I have been having a nice busy social life since coming back to the burg, and as I'm no longer on my old buddies called dyhdracodine, so I can.....wait for it......drink, woo!! Hmmmm, I think I might have mentioned this in the post I did when I got back here. My drinking started again, the day before coming back up here, and well in true Kat/Katie/Katherine Ruane stylee, I didn't start drinking again slowly by having maybe a glass or two of wine with a meal etc, oh no, I jumped into a vat of it from the word go. I have not been quite so drunk as that Sunday though,(or dying so much that follwoing morning...wandering round the house packing chanting in my head 'don't be sick, don't be sick, don't be sick'!!!!!!) but I think that may have had something to do with a bottle and half to two bottles of wine and 2 shots of sambuca on an empty stomache...........need I say more?!?!?!?! I am very proud of my self that on Thursday I not only managed to be up a good hour and a half before my appointment, ok, so that does admittedly mean that I was up at 9.15, but I had a friend staying and we didn't go to bed til about 2, and the night before a fairly similar story for going to bed, and was up at 9.30 on wed, so little me who needs her sleep did not get enough, anyways back to the point, which was...ummm......oh yeah, was up with less sleep than ideal, had all my blood drained from my body, and NO that is NOT an exaggeration (ummm...la la la...I might have just seen a flying pig....!!!) went to races and had a great time, got home, cup of tea, get changed and go back out. The amount of alcohol consumed shall remain a secret (3 big glasses of wine at the races, 3 or 4 glasses at a friends before going out, a champagne coctail and another with tequila and vodka I think in a bar....then go to the club and have 5 shots etc etc etc) AND I could still walk and talk!!!! I also discovered to my delight that they do bottles of cider woo!!! I luuuuuuurve cider! Except people thought I was drinking an alcopop...AS IF!!!!! They are rank!!! But my lovely little bottle of Strongbow (drunk with a straw, yes I am that classy, did you not know that to my fathers horror I also rather like vodka and lemonade........) made me VERY happy. I don't believe in half pints, and if I had had a pint I think I would have been on the floor!! So had a really good evening seeing loads of people I haven't seen in ages. The only arse was that some (excuse my language) fucking wanker took my camera....sob, moan, wail, beating of my breast!!! (So once again, if any one wants to contribute to the above mentioned charity, I can buy another one!!!) But the slight silver lining to a huge black cloud is that I nearly lost my signet ring,...someone might have spilt their shot all over my hand....and to be honest I would rather lose my camera than my ring! So umm yes, Thursday was a very fun if not just a little bit alcoholic day! Oooh, also had I bet at the races (we went to them in Perth) I would have won cause my horse (well obviously not mine.....) won the
race it was in. But as I have said many a time, betting and alcoholism run in my family and I embrace one and not the other!!!!
What else, hmmmm, my darling flatty has gone to France with her man for 10 days, so I am home alone in the flat til I go home...sob sob sob, but worry not, I will be ok!!! Why did I say that, not sure, maybe it's cause I was remembering that I was toying with going out again last night, but remembered I only had 5 and a half hours sleep the night before and I'm ill...not the cancer,...I have a bit of a sniffly cold, sob sob sob, actually I think it's developing into a BEAUTIFUL sinus infection...thought I'd share!! And that I promised Iona I'd stay up with her til she left (at 3am) so thought should prob stay in, and I'm going out tonight, so probably would have died, or at least had liver complaint!!!
Oh, the drug got approved that went up infront of the board last week, can't remember if I've said that or not...will get it when I go home when I go for a check up at the Hammersmith. Am also having a blood test when I go home at the local surgery before i go to the Hammersmith as I think they want to keep an eye on the old cell count, so will do my best to get the results on this, but as you all know, the internet at home is gay and I can't, or at least, I couldn't log in at home, might be able to now....
Don't know what else, was on a roll, but it has fizzled away.....
Ooooh, everyone LOVES my new hair, (really need to work out how to put pics on this thing) and have been said I look chic and sophisticated, woo, get in!!!! Moi, sophisticated!!!! (well sober me anyways!!)
Well I think I shall leave this one there for the moment, if I remember anything I shall post it later. Hope alls well with eveyone....
Love, laughter and smiles as always,
XXXXXXXXXXX
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