So my lovely bloglets,
I’m actually feeling pretty happy today….shocker I
know! The past couple of weeks have been
really tough and everyday has felt like a battle with a fair amount of tears,
sometimes in private and sometimes when speaking to my tutors - especially when
I received an email from my tutor saying that the welfare panel wanted medical
evidence to allow my dissertation extension as I'm in remission…. I’m not going to lie I
felt like going into Uni and punching the fuckers. My email back to my tutor
might have been a little bit facetious and I told her to tell them to read my
blog…. Luckily I have the support of all the staff and there has been the offer
of various emails to be sent to the welfare panel explaining that remission yes
but the impact of the chemotherapy is intense.
Bureaucratic arseholes. So.
That was FUN!
I had my check up on Tuesday with my new consultant who is
really lovely and of course, I cried.
She is writing a letter for me to take into Uni explaining the impact of
my drugs and she said that I should be applauded for my degree….. It’s nice to
know that even though some people aren’t in my corner, those that I come into
contact with are. On Monday I had two
patients in clinic and I hadn’t done the work I was meant to for one of
them. I had that days session planned
and researched, but nothing else. My
supervisor said to me that it was ok and that this happens in life. When I’m in practice I won’t always be able
to have more than that’s days session planned.
The fact that I was crying probably meant that she couldn't really
bollock me either….
So, hospital. I have
a big decision to make. My consultant
has suggested that I try an alternative drug.
The arse is that I take it twice a day and it has to be an hour before
or after food. And I don’t know the side
effects. It could be that there aren’t
any and I feel absolutely fine and I get my energy levels back…..or it could be
worse. As I had such a fucking hideous
time on the first lot with excruciating pain I am hesitant to change. Whilst, yes, the side effect of chronic
fatigue is pretty fucking shit, I know it.
I know how to deal with it….just about.
I know the signs my body gives me when I’m burnt out and need to rest
and withdraw within to conserve power and look after me. The new drugs could be amazing with no side
effects and I could get my life back….I’m just scared of the unknown. I’m back
in 6 weeks so I have time to think and make a decision. I am also going to be given a break from the chemo for a couple of weeks. It's needed. I am being listened to and it's amazing. I wish in a way that my consultant had just
said that she was going to change the drugs and then the decision was hers. Sometimes I fucking hate being an adult. On a plus note I have lost all the weight I
put on at Christmas. WOO HOO!!!!! Even though a cheeky fucker asked me if I
weighed 70 kgs. Twat.
This week is the last week before reading week and I can’t
wait to be able to lie in…..
It’s funny the impact music has on me. I might have downloaded some amazing cheese
and it makes me feel good. I need to use
music more. I also love singing. It makes me happy. I should do more of that. I need to release the guilt and focus on me
and happiness. Yesterday I went to my tutors
house to have some quality time with Boris her Basset Hound. He is absolutely gorgeous. Animals.
They are wonderful and they know when you need them. I still miss Winnie and Frank so much when I
go home. Hopefully I can get a pet of my
own soon, or maybe even a boyfriend.
Fucking hell. That would be
monumental! Touch – I need it. Whether a hug from a friend or a cuddle with
a dog. It restores me. I saw my cousin for lunch before the hospital
and gave her a massive hug hello. It was
needed.
Tattoo. It’s
happening AND with parental approval.
Can’t believe it! I’m going to
the tattoo place on Tuesday to have a chat, and get it booked. Then I shall forever be with hope and it
shall forever be with me. My lovely
friend Peter has started chemo again this week….
Twitter – over the past couple of weeks it has been a space
for me that I have needed. A place where
I can say what I need and the space is given.
And in the post I received a care package and a card with the following
written – ‘Thanks for being strong. It
inspires us to remember the important things.’
I forget this and need to focus on this more. I also through twitter won a
competition! This NEVER happens. In fact I have won 2. I won a free snickers – amazing – the nuts makes
them healthy…..and a painting. An artist
I follow on twitter makes the most wonderful paintings and I won one! This one.
I come into contact with so many wonderful and lovely people on this
weird social place that is impossible to explain but one I wouldn't be
without. And I have been meeting people
from it – some very special people– and this makes me happy. People have so much to give even if they can’t
see it. And you spend time with them and
it feels like you have known them forever.
There is an ease, a bond, impossible to explain but yet I feel it.
I have more to say but this is getting rather long, another
will follow soon; got a couple of cancertastic events next week which I will no
doubt blog about so will save the rest for that one.
So with a smile on my face,
With so much love, laughter and hope,
XXX
I detach this from the person on twitter but I have to say, you really are an inspiration. I am sure there are loads of people out there that you bring hope to. Don't stop what you do and write as I am sure it touches peoples hearts more than they let on. I know you make my mind fill with wonder. Keep it up tiger. Lovely to see the smile in text :-)
ReplyDeleteLovely and thought provoking as always Katie. Im glad you liked the message- inspiration obtained in Morrisons cafe. Hoped it wasnt cheese. x
ReplyDelete