If you go to Jimmyteens.tv you will see my second video blog is up.
Hope all is well with everyone.
XxX
Wednesday, 22 September 2010
Me and Jack
I just wanted to put on here a photo of me and Jack who so tragically died last week. This is us together outside number 10 when we went to number 11 earlier in the year for TCT.
A smiling superstar
Monday, 20 September 2010
And it hits you like a bus
I'm not going to go on for hours, I just wanted to put on here that a friend of my cousins is running the Thames path (crazy, crazy man!) for Teenage Cancer Trust. Never has it been more of a worthwhile thing to do for TCT as I was told this morning that a buddy I met through TCT lost his battle. Had e been diagnosed earlier this may have been avoided. Jack was a superstar, positive and smiling to the end.
Here is the link to Nick's fundraising page. I know every week people are asking for money, so if you can, please give. And I will carry Jack's smile with me forever.
Ok, so am doing this all from my phone and can't fund the link, but go to the Virgin fundraising website and search for Scenick Run, you can donate there.
Much love, laughter and smiles,
XxX
Here is the link to Nick's fundraising page. I know every week people are asking for money, so if you can, please give. And I will carry Jack's smile with me forever.
Ok, so am doing this all from my phone and can't fund the link, but go to the Virgin fundraising website and search for Scenick Run, you can donate there.
Much love, laughter and smiles,
XxX
Saturday, 18 September 2010
Mixed Emotions
Well my little bloglets,
It's been a couple of weeks of mixed emotions culminating with a brief episode of sobbing yesterday at Heathrow airport after Milo (little brother for those of you who don't know) flew to Singapore for 3 years with work. Being only 13 months older than Milo we have spent our lives being nearly twins; went to the same school, spent many a year sharing bedrooms and when we were little, if Milo had a nightmare, I would tell him to chose his dreams from a bookcase in his imagination, so he could decide what he dreamt about. And even when at uni he was only an hour and half away down the road in Newcastle, and in London just over the river, so yesterday was a bit emotional for me to say the least. He has been so brilliant to me since my diagnosis - truly the best baby brother, and I would never be able to put it into words, so should probably stop this rather self indulgent dialogue now. Also I'm beginning to upset myself so will move on....
I am now officially a student again, woop! ....have also worked out how much I will owe the government when this degree is over, and this 4 years combined with my previous 4 years is rather a terrifying amount, so will try to forget! Let me just say that if I had the money in one lump sum, it would be a very hefty deposit for a flat in town! I am very excited about the degree, not so excited about the Maths and Physics part of it....I hadn't thought these two subjects were a part of the teaching I must admit.....And I was surprised to discover that only a handful of us have been to uni before, so at least I am better prepared than most and know what to expect. I am also happy to discover that many are mid twenties/early thirties, I had assumed that I would be younger by quite a few years, but am not, that's good! Not that I have anything against older people being at uni or anything....right, move on before I have to go and get a spade to get me out of this hole....
Check up just over a week ago and more good news. Platelets at 90 and Leukaemic rate down to 0.026% so pretty fucking happy with that. On a not so positive note the scales are creeping back up, and there is no element of forgiveness with electronic scales so my running regime starts with no excuses on Monday! Also my PCT (primary care trust) have refused to pay back the £4,000, but as I am going to registering with a new doctors this week in a different borough in London as I am now a Lambeth rather than Wandsworth girl, my consultant has suggested we re apply as it may well be a different PCT in that area. Also TCT are going to get involved and see if they can do anything to help.
On a TCT note, I have been given the DVD of me speaking at the Royal Albert Hall and am very happy to report back that it is not embarrassing at all and am actually rather impressed with my coolness and togetherness considering how nervous I felt! I was also at Canary Wharf last week for a charity day at BGC (Barlcays something a rather) and meet Cilla Black and the Tony (can't remember his surname) who sang Amarillo! I had a really long chat with his wife who is massively into complimentary health.
New flat - love it, am so happy in it and Liza likes it to, thanks fuck! As I was really worried that she wouldn't. Am being driven back tomorrow night with the last of my kitchen stuff and a couple of chairs etc and I believe it will be fully kitted out. I tell you what, Spadsa (Asda to everyone else, I refer to it as Spadsa as it's where special people shop....) it bloody brilliant when needing to buy basics. I got a mop for 2 quid, 16 or 18 glasses for a fiver! Bloody brilliant.
What else,...hmmm, ooh, my first video blog has gone live, so here is the address so you can have a look. I believe that a new one will be put up every week from now on (until they run out of them, which reminds me, I need to post back my most recent ones....). So here is the link:
http://www.jimmyteens.tv/2010/09/18/katie-ruane-blog-1/
And ummm was going to add something else but I went to take something out of the oven and can't remember what it was...bugger.....
As I have completely lost my train of thought shall bugger off! It's also Kevla's birthday (the big 60!!) so should probably go and spend some time with him.....
How funny, was just talking about my speaking at the Royal Albert Hall where I announced my love for Dave Grohl and now The Foo Fighters are being played on the radio...WEIRD!!!! Right, am now really buggering off.
Much love, laughter and smiles as usual,
XXX
p.s. how many have noticed the new layout/colour scheme to my blog?? Also another funny coincidence is that the blue is the blue of TCT! Crazyness....
It's been a couple of weeks of mixed emotions culminating with a brief episode of sobbing yesterday at Heathrow airport after Milo (little brother for those of you who don't know) flew to Singapore for 3 years with work. Being only 13 months older than Milo we have spent our lives being nearly twins; went to the same school, spent many a year sharing bedrooms and when we were little, if Milo had a nightmare, I would tell him to chose his dreams from a bookcase in his imagination, so he could decide what he dreamt about. And even when at uni he was only an hour and half away down the road in Newcastle, and in London just over the river, so yesterday was a bit emotional for me to say the least. He has been so brilliant to me since my diagnosis - truly the best baby brother, and I would never be able to put it into words, so should probably stop this rather self indulgent dialogue now. Also I'm beginning to upset myself so will move on....
I am now officially a student again, woop! ....have also worked out how much I will owe the government when this degree is over, and this 4 years combined with my previous 4 years is rather a terrifying amount, so will try to forget! Let me just say that if I had the money in one lump sum, it would be a very hefty deposit for a flat in town! I am very excited about the degree, not so excited about the Maths and Physics part of it....I hadn't thought these two subjects were a part of the teaching I must admit.....And I was surprised to discover that only a handful of us have been to uni before, so at least I am better prepared than most and know what to expect. I am also happy to discover that many are mid twenties/early thirties, I had assumed that I would be younger by quite a few years, but am not, that's good! Not that I have anything against older people being at uni or anything....right, move on before I have to go and get a spade to get me out of this hole....
Check up just over a week ago and more good news. Platelets at 90 and Leukaemic rate down to 0.026% so pretty fucking happy with that. On a not so positive note the scales are creeping back up, and there is no element of forgiveness with electronic scales so my running regime starts with no excuses on Monday! Also my PCT (primary care trust) have refused to pay back the £4,000, but as I am going to registering with a new doctors this week in a different borough in London as I am now a Lambeth rather than Wandsworth girl, my consultant has suggested we re apply as it may well be a different PCT in that area. Also TCT are going to get involved and see if they can do anything to help.
On a TCT note, I have been given the DVD of me speaking at the Royal Albert Hall and am very happy to report back that it is not embarrassing at all and am actually rather impressed with my coolness and togetherness considering how nervous I felt! I was also at Canary Wharf last week for a charity day at BGC (Barlcays something a rather) and meet Cilla Black and the Tony (can't remember his surname) who sang Amarillo! I had a really long chat with his wife who is massively into complimentary health.
New flat - love it, am so happy in it and Liza likes it to, thanks fuck! As I was really worried that she wouldn't. Am being driven back tomorrow night with the last of my kitchen stuff and a couple of chairs etc and I believe it will be fully kitted out. I tell you what, Spadsa (Asda to everyone else, I refer to it as Spadsa as it's where special people shop....) it bloody brilliant when needing to buy basics. I got a mop for 2 quid, 16 or 18 glasses for a fiver! Bloody brilliant.
What else,...hmmm, ooh, my first video blog has gone live, so here is the address so you can have a look. I believe that a new one will be put up every week from now on (until they run out of them, which reminds me, I need to post back my most recent ones....). So here is the link:
http://www.jimmyteens.tv/2010/09/18/katie-ruane-blog-1/
And ummm was going to add something else but I went to take something out of the oven and can't remember what it was...bugger.....
As I have completely lost my train of thought shall bugger off! It's also Kevla's birthday (the big 60!!) so should probably go and spend some time with him.....
How funny, was just talking about my speaking at the Royal Albert Hall where I announced my love for Dave Grohl and now The Foo Fighters are being played on the radio...WEIRD!!!! Right, am now really buggering off.
Much love, laughter and smiles as usual,
XXX
p.s. how many have noticed the new layout/colour scheme to my blog?? Also another funny coincidence is that the blue is the blue of TCT! Crazyness....
Friday, 3 September 2010
A little heads up/promotion
Sooooo, as I've previously mentioned jimmyteens.tv (who are are the video blog people who work alongside Teenage Cancer Trust) are launching live studio stuff on Wednesday 15th September at 6pm where you will see one of my new cancer kid buddies, Peter aka Pierre when on screen hosting or doing something....
Anyways, if you are free and have nothing else to do, have a gander and who knows, you might even see me on there live, rather than highly edited when doing my little video blogs one day!
www.jimmyteens.tv - support them, they think I'm interesting and special in a good way, not in a taking the piss way...at least I thought they were being serious.....
XXX
Anyways, if you are free and have nothing else to do, have a gander and who knows, you might even see me on there live, rather than highly edited when doing my little video blogs one day!
www.jimmyteens.tv - support them, they think I'm interesting and special in a good way, not in a taking the piss way...at least I thought they were being serious.....
XXX
Wednesday, 25 August 2010
Found a flat!
Well my lovely bloglets,
I have found a flat, woop!! Tis a MASSIVE relief. It's Victorian so has good sized rooms, isn't too expensive and is in Brixton which is the new place to be...well I think so anyways. I predict that everyone will move there from Clapham as Clapham is getting waaay tooo expensive! Oh and also, the flat is right next to the prison which means that it is really safe, cause lets face it, who is going to be have in an illegal manner right next to a prison where there are guards patrolling etc?? No one!! Well unless they are massively stupid!!
My finding has also come through for my degree..have I mentioned that before? I can't remember? Anyways, I had stupid amounts of grief and hassle trying to get it all okayed. They should have done it from the word go as I am entitled to it as my first degree wasn't an Hons (thank fuck) so I will be furthering my education, so am allowed it....but they didn't get that did they?! As they saw that I had a degree they didn't read what I had put correctly so missed the fact that is isn't an Hons, and then didn't look at my degree certificate that I posted in properly which clearly states that...so had to play the cancer card and send in letters from current and old consulant, from my on LEA to confirm my diagnosis during uni and that it interrupted my studies blah blah blah. I FINALLY spoke to someone at Student Finance with more than half a brain cell who said, 'you are entitled to everything as you don't have an Hons degree and this should have been approved in March when I applied. Good.............. So now I don't have to panic and worry about how I'm going to pay for it as our beloved government are...until I have to pay it back.....
I have also recently received an email to say that my old employer wants to settle out of court, even though if it went to court their case would be solid and win....yeah right!! So that is good news. I should hopefully hear back soon with their response to the figure I put forward, and of course it will be a 'yes we will pay now; response!!
IVF money front, if my consultant hasn't been able to progress by my next appointment which is in a couple of weeks, I shall get TCT involved. Once again, I can't remember if I've mentioned this before or not...I could check, but can't be arsed. Am also on a roll so if I do that I will break my writing flow, which of course would NOT (I'm getting involved with capitol letters today!) be good. So yes, defo shouldn't have paid for IVF, and TCT will back me all the way to the media, so you never know, I could be in the press (again) very shortly. I might think about getting an agent soon...ha ha ha, jokes!
Ummmm, suddenly my hair looks very glossy and seems to be much healthier than normal, so fingers crossed that I get some fucking good results in a couple of weeks! It's time I got them, and getting a bit bored of this cancer malarkey,....
I've been doing some films for jimmyteens.tv and they should be on their website soon, so will put the link on here when they are so you can all have a watch.
Ummm, that's it me thinks, move in date to new flat is the 14th Sept at the moment, hopefully it will be moved forward as have been homeless for nearly a month and don't really fancy sofa hopping for another 3 weeks....although on the flip side it does mean more money in the bank that's not going out on rent.....
Right, time to bugger off. Can't be arsed to re- read this for spelling mistakes and typo's. Hope it's not too bad and this all makes sense! Have been speed typing!
Lots of love, laughter and smiles as always,
XXX
I have found a flat, woop!! Tis a MASSIVE relief. It's Victorian so has good sized rooms, isn't too expensive and is in Brixton which is the new place to be...well I think so anyways. I predict that everyone will move there from Clapham as Clapham is getting waaay tooo expensive! Oh and also, the flat is right next to the prison which means that it is really safe, cause lets face it, who is going to be have in an illegal manner right next to a prison where there are guards patrolling etc?? No one!! Well unless they are massively stupid!!
My finding has also come through for my degree..have I mentioned that before? I can't remember? Anyways, I had stupid amounts of grief and hassle trying to get it all okayed. They should have done it from the word go as I am entitled to it as my first degree wasn't an Hons (thank fuck) so I will be furthering my education, so am allowed it....but they didn't get that did they?! As they saw that I had a degree they didn't read what I had put correctly so missed the fact that is isn't an Hons, and then didn't look at my degree certificate that I posted in properly which clearly states that...so had to play the cancer card and send in letters from current and old consulant, from my on LEA to confirm my diagnosis during uni and that it interrupted my studies blah blah blah. I FINALLY spoke to someone at Student Finance with more than half a brain cell who said, 'you are entitled to everything as you don't have an Hons degree and this should have been approved in March when I applied. Good.............. So now I don't have to panic and worry about how I'm going to pay for it as our beloved government are...until I have to pay it back.....
I have also recently received an email to say that my old employer wants to settle out of court, even though if it went to court their case would be solid and win....yeah right!! So that is good news. I should hopefully hear back soon with their response to the figure I put forward, and of course it will be a 'yes we will pay now; response!!
IVF money front, if my consultant hasn't been able to progress by my next appointment which is in a couple of weeks, I shall get TCT involved. Once again, I can't remember if I've mentioned this before or not...I could check, but can't be arsed. Am also on a roll so if I do that I will break my writing flow, which of course would NOT (I'm getting involved with capitol letters today!) be good. So yes, defo shouldn't have paid for IVF, and TCT will back me all the way to the media, so you never know, I could be in the press (again) very shortly. I might think about getting an agent soon...ha ha ha, jokes!
Ummmm, suddenly my hair looks very glossy and seems to be much healthier than normal, so fingers crossed that I get some fucking good results in a couple of weeks! It's time I got them, and getting a bit bored of this cancer malarkey,....
I've been doing some films for jimmyteens.tv and they should be on their website soon, so will put the link on here when they are so you can all have a watch.
Ummm, that's it me thinks, move in date to new flat is the 14th Sept at the moment, hopefully it will be moved forward as have been homeless for nearly a month and don't really fancy sofa hopping for another 3 weeks....although on the flip side it does mean more money in the bank that's not going out on rent.....
Right, time to bugger off. Can't be arsed to re- read this for spelling mistakes and typo's. Hope it's not too bad and this all makes sense! Have been speed typing!
Lots of love, laughter and smiles as always,
XXX
Sunday, 8 August 2010
Really quickly because I'm meant to be peeling pears...
So bloglets,
Really quickly as I'm meant to be peeling pears for some grand pudding the Kevla is in the midst of making, I want to put a link here for you to have a look at:
http://www.jimmyteens.tv/2010/08/08/getting-to-know-you/
It's the first of a series of videos from The Way Forward weekend that I went to a few weeks ago and blogged about. Obviously it's amazing as I'm in in!! Also it's brilliant because two new buddies I met through the weekend, Peter Wilkinson and his beautiful little wife, Debs are behind the editing etc of the video. So a round of applause for them please!
Ok, going a little bit mental now, and I fear I'm about to get a bollocking for not doing the pears....
Much love, laughter and smiles as ever
XXX
Really quickly as I'm meant to be peeling pears for some grand pudding the Kevla is in the midst of making, I want to put a link here for you to have a look at:
http://www.jimmyteens.tv/2010/08/08/getting-to-know-you/
It's the first of a series of videos from The Way Forward weekend that I went to a few weeks ago and blogged about. Obviously it's amazing as I'm in in!! Also it's brilliant because two new buddies I met through the weekend, Peter Wilkinson and his beautiful little wife, Debs are behind the editing etc of the video. So a round of applause for them please!
Ok, going a little bit mental now, and I fear I'm about to get a bollocking for not doing the pears....
Much love, laughter and smiles as ever
XXX
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